21st Century Cures Act

December 5, 2017

New Online Platform Created to Support Sickle Cell Disease Community

News

A new online platform, called oneSCDvoice.com, will help those affected by sickle cell disease (SCD) by offering free access to comprehensive support and a robust knowledge network . rareLife solutions, the health ... Read more

November 21, 2017November 21, 2017

Rare Disease Patient Groups Unite to Preserve Orphan Drug Tax Credit in US

News

The National Organization for Rare Disorders (NORD) says it’s “disappointed and dismayed” after the House of Representatives voted 227-205 last week to repeal the Orphan Drug Tax Credit as ... Read more

December 20, 2016December 20, 2016

Signing of ‘Cures Act’ Welcomed for Potential in Speeding New Sickle Cell Treatments

News

The recent signing into law by President Barack Obama of the 21st Century Cures Act, a bipartisan bill whose aims include speeding the development of treatments for patients with difficult medical conditions, ... Read more

Pin It on Pinterest