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A Letter to Sickle Cell
A couple of years ago I received a telephone call from a gentleman who stated to have “gotten your number from your hematologist. We are having a contest and inviting sickle cell patients to write a letter to the disease as if it was a person.” I was promised a hundred dollar for the project. Unfortunately, the day I was to turn in the letter, a snow storm was announced. The gentleman called and informed me that he had to leave the state and would keep in touch. This was the last time I heard from him.
Since I had already written the lettering kept it, I will share it with you bellow. Hope you enjoy it and let me know if you can relate.
Sickle Cell Anemia,
<i>You have taken hold of me since I was born. During my early years, it was not me per se that was mostly affected. You have deeply wounded my parents, sibling, and everyone else in my entourage. You have brought fear, anxiety, disquietude in all who knew me and of me. Sickle Cell Anemia, is there going to be a time when you will be history? Or are you going to settle for good to terrorize the lives of the ones you have claimed? Am I doomed to live my life in fear of an impending painful crisis, stroke, infection or even death? You are so unpredictable it is scary. I am begging for a normal life, please hear me out.</i>
Sickle Cell Anemia, when I was about twelve years old, I remember being in agony. I was thinking that the time has come. Am I going to die? I asked my mom. Bravely, she answered: “Viane, you were six months old when you were <i>extremely sick. I took you to the clinic just to hear the doctor telling me: Ma’am, your child is very sick, there is no hope. I would suggest you go home and prepare for her death.” She told me the doctor even refused to prescribe any medications, “there is no point” the doctor declared. My mom said she was distraught, helpless and angry. My dad felt powerless, mad and discouraged. Thankfully for my parents, I did not die but stayed alive solely to torture them with my off-and-on crisis. Sickle Cell Anemia, you make me feel less than a person. I have missed so many fun moments of my childhood just to be on a hospital bed suffering. I could not play sports, I could not travel, I could not go to sleep overs, to remember a few. When I was a teenager, I looked underdeveloped. I was teased, ridiculed, dismissed, bullied, misunderstood etc. I entered a five day coma a few years ago which left my love ones in uncertainty and despair. Again, when I got better it was just for a little while. Sickle Cell Anemia, I am tired of being judged by people who do not understand you. It Really saddened me to have some people thinking that I am contagious. Somebody thought I had AIDS. Sometimes I have people asking if I have hepatitis because of my yellow sclera. A classmate once asked if I was anorexic because I was so skinny. One of my family members assumed that I secretly had an abortion after having a surgery from your complications. I feel tormented by your many erratic signs and symptoms. I need a break from you. You have affected every area of my life. The thing that hurts me the most is being subjected to many oblivious health care professionals assuming that I am drug seeking while enduring indescribable, excruciating pain. Sickle Cell Anemia, can you please stop torturing me?</i>
<i>I would do anything to be freed from you. YOU ARE A MONSTER! I do not wish you on my worst enemy.</i>
Viviane Salzman
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