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Have you ever/do you ever hide the fact that you have sickle cell?
This is something that I am aware that a lot of people do, mainly due to the fear of being unfairly judged by others.
Is this something that you have ever experienced?
Nop, never hide my SCD but my fair is not the judgment of people, my fear is most of people didn’t know about SCD so i can explain for them and not hide that, everyone better to know what is SCD, in this case they will not judge you wrong.
That’s a very good stance to take Kassem, thank you for sharing. I think awareness and knowledge of sickle cell is very important to change any narratives. Sickle cell has a lot more exposure now than it did 5/10 years ago. But I do understand not everyone feels this way and some people may still not be comfortable sharing with others.
That’s a very good stance to take Kassem, thank you for sharing. I think awareness and knowledge of sickle cell is very important to change any narratives. Sickle cell has a lot more exposure now than it did 5/10 years ago. But I do understand not everyone feels this way and some people may still not be comfortable sharing with others.
I did for years. Now that I have lived a long time I am grateful to be here. I was labeled the sickly one as the only child of 7 with SCD. I did not want the questions or fear that I sensed from my mom.
I still do not share much except when the opportunity presents itself.
I know a lot of people with sickle cell that can relate, especially the stigma of being the sickly one or being called a sickler.
@healed56, How often does the opportunity present itself for you to speak about this openly?
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