-
Hiding your condition
Have you ever/do you ever hide the fact that you have sickle cell?
This is something that I am aware that a lot of people do, mainly due to the fear of being unfairly judged by others.
Is this something that you have ever experienced?
-
5 Replies
-
Nop, never hide my SCD but my fair is not the judgment of people, my fear is most of people didn’t know about SCD so i can explain for them and not hide that, everyone better to know what is SCD, in this case they will not judge you wrong.
-
That’s a very good stance to take Kassem, thank you for sharing. I think awareness and knowledge of sickle cell is very important to change any narratives. Sickle cell has a lot more exposure now than it did 5/10 years ago. But I do understand not everyone feels this way and some people may still not be comfortable sharing with others.
-
That’s a very good stance to take Kassem, thank you for sharing. I think awareness and knowledge of sickle cell is very important to change any narratives. Sickle cell has a lot more exposure now than it did 5/10 years ago. But I do understand not everyone feels this way and some people may still not be comfortable sharing with others.
-
I did for years. Now that I have lived a long time I am grateful to be here. I was labeled the sickly one as the only child of 7 with SCD. I did not want the questions or fear that I sensed from my mom.
I still do not share much except when the opportunity presents itself.
-
I know a lot of people with sickle cell that can relate, especially the stigma of being the sickly one or being called a sickler.
@healed56, How often does the opportunity present itself for you to speak about this openly?
Log in to reply.