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•  Sickle Cell Forum Administrator

  These Apps Help Me Manage Sickle Cell

  Rochelle Richard replied 2 years, 2 months ago 1 Member · 2 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  The Importance of Practicing Gratitude

  Rochelle Richard replied 2 years, 2 months ago 1 Member · 1 Reply

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  What’s Inside My Medicine Cabinet?

  Rochelle Richard replied 2 years, 2 months ago 1 Member · 1 Reply

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  The Importance of Better Representation in the Medical Industry

  Rochelle Richard replied 2 years, 2 months ago 1 Member · 1 Reply

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  It’s Difficult to Manage Sickle Cell Pain at Home During a Pandemic

   Sickle Cell Forum Administrator replied 2 years, 11 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  VEST Lowers Duration of Painful Sickle Cell Disease Crises

   Sickle Cell Forum Administrator replied 2 years, 11 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Pink, Green, Blue, Purple Lights Illuminate World for Rare Disease Day

   Sickle Cell Forum Administrator replied 2 years, 11 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

   Sickle Cell Forum Administrator replied 3 years, 1 month ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Gates Foundation, Novartis Working on Affordable Gene Therapy for Sickle Cell

   Sickle Cell Forum Administrator replied 3 years, 1 month ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Here’s How You Can Be a Better Partner for a Sickle Cell Patient

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Rare Disease Day at NIH, Set for March 1, Growing Year by Year

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  NHLBI Challenges Students to Develop Tools to Raise SCD Awareness

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  The Pandemic Won’t Stop Rare Disease Day on Feb. 28

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  It’s OK to Take a Break From Raising Awareness About Sickle Cell Disease

   Sickle Cell Forum Administrator replied 3 years, 2 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Why I Will Be Getting the COVID-19 Vaccine

  Mrs. Norris-Mulligan replied 3 years, 2 months ago 1 Member · 1 Reply

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  BCH-BB694 Gene Therapy Safely Treating Severe SCD Patients in Pilot Trial

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  GBT Launches Early Access Program for Voxelotor in Europe, Other Regions

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  What Does a Sickle Cell Crisis Feel Like?

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  CTX001 Continues to Prevent VOCs in People With Severe Disease, Trial Finding

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Adakveo Approved by EU for Pain Crises in SCD Patients, 16 and Older

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Phase 1 Trial of FTX-6058, Sickle Cell Fetal Hemoglobin Therapy, to Open

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  How I Manage a Sickle Cell Crisis at Home

   Sickle Cell Forum Administrator replied 3 years, 3 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Siklos, Hydroxyurea-based Treatment for SCD, Available in 100 mg Scored Tablets

   Sickle Cell Forum Administrator replied 3 years, 5 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions