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Ogugua Samuel Nnadozie became a registered member 1 day, 11 hours ago
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Michael Quadri started the topic Trauma Effects? in the forum Motivational Mondays 3 days, 4 hours ago
How does trauma play a role in your sickle cell journey? It’s good to recognise and acknowledge each other’s hardships.
Please use the forums to share tips for coping mechanisms and uplifting material,
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Olaniyi became a registered member 3 days, 6 hours ago
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Eniola Emmanuel Olawale became a registered member 3 days, 6 hours ago
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Russell replied to the topic Does the hospital feel like home to you? Do you feel safe there? in the forum Adults With Sickle Cell Disease 5 days, 19 hours ago
Hi, your child or yourself will only feel like home if there’s family 👪 with you, if you’re in the hospital alone the nurses & some doctors, want hear you as you are trying to tell them how you the patient feel, Mary and I had senior nurses & respiratory therapist tell us don’t leave your child hear alone if you can help it, we lost Trey on July…[Read more]
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Addo Emmanuel became a registered member 1 week ago
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Tito Oye started the topic Ways your significant other is present for your health needs? in the forum Parents and Caregivers 1 week ago
It is important that our significant others are part of our health journeys. We must inform those closest to us of the things that they can do to support us when we are at our worse.
Support can be in the form of:
- Taking up chores
- Being a motivator
- Just being present
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Michael Quadri started the topic Does the hospital feel like home to you? Do you feel safe there? in the forum Adults With Sickle Cell Disease 1 week ago
Do you feel comfortable in your local hospital?
Please share why you do or don’t feel comfortable.
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Tito Oye started the topic Summer Plans in the forum Adults With Sickle Cell Disease 1 week, 1 day ago
What are looking forward to this summer?
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Tito Oye started the topic What is your go to workout? in the forum Adults With Sickle Cell Disease 1 week, 2 days ago
Exercising is something that was never really encouraged by my parents, all in the fear that any strenuous activity would cause a crisis, but now I’m older I understand the value in exercising. Everything in moderation in my motto!
I love exercising by going on long walks, how about you?
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Michael Quadri started the topic “Hacks” that make hospitalizations easier. in the forum Adults With Sickle Cell Disease 1 week, 2 days ago
Share your tips, tricks, and hacks that make going to the hospital that little bit easier
Do you have a routine or a preference in terms of time you go?
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Tito Oye replied to the topic Sponsored events in the forum Adults With Sickle Cell Disease 1 week, 3 days ago
Thanks Helena,
These are great tips and definitely things to consider, I am doing an obstacle course with my friends this summer called tough mudder. I want to push myself but I also understand my limits. In general it would be fun and I am looking forward to it!
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Tito Oye replied to the topic Freeing Activities in the forum Motivational Mondays 1 week, 3 days ago
Ahh a lot of kids are like that 😂😂
The earrings look amazing!!! I’ll defiantly get myself a pair
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Michael Quadri replied to the topic What’s something people never understand about sickle cell you wish they did? in the forum Adults With Sickle Cell Disease 1 week, 3 days ago
Hi Ada, have you found anything that helps when communicating your feelings to people?
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Michael Quadri replied to the topic Have you been vaccinated? If so, how was your experience? in the forum Coronavirus (COVID-19) and Sickle-Cell Anemia 1 week, 3 days ago
Thank you for sharing this Ethan, I hope your son is doing much better now.
I know that people have reacted differently to the vaccine. But I am happy that the hospital provided all the necessary support for your son.
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Russell became a registered member 1 week, 3 days ago
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Tito Oye started the topic World Blood Donor Day 2021 in the forum Adults With Sickle Cell Disease 1 week, 3 days ago
Today is World Blood Donor Day 2021
No matter how many times I thank blood donors, it can never be enough.
When you give blood you are literally giving life, and you’re giving it to someone who you’ve most likely never met before.
It’s a beautiful thing really, and it helps me remember that there are really good people in the world.…[Read more]
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Joseph Susanna became a registered member 1 week, 3 days ago
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Brittany Clark became a registered member 1 week, 3 days ago
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Brittany Clark changed their profile picture 1 week, 5 days ago
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