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Chelsea became a registered member 1 week, 1 day ago
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Abdul Aziz kabir became a registered member 1 month ago
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Ibrahim fridaus became a registered member 1 month ago
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Keesha became a registered member 1 month ago
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Michael Quadri started the topic Food triggering a crisis? in the forum Adults With Sickle Cell Disease 1 month ago
Can food trigger a sickle cell crisis?
This may seem like a random question but I am very intrigued. There are so many things that can trigger a sickle cell crisis, some such as stress levels which I was surprised to learn about, but I was wondering if you have ever experienced certain foods triggering a sickle cell crisis?
Or, maybe a…[Read more]
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Hassananu became a registered member 1 month, 1 week ago
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Rhoda Funso became a registered member 1 month, 1 week ago
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Toni Babarinde started the topic Claiming PIP for Sickle Cell Anemia in the forum Adults With Sickle Cell Disease 1 month, 1 week ago
Hi,
Has anyone successfully claimed PIP for Sickle Cell Anemia and if so, do you have any tips on making a successful application?
(My family member has Sickle Cell)
(Any help would be much appreciated 😄)
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Toni Babarinde became a registered member 1 month, 1 week ago
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Pamela Merritt, M.D. became a registered member 1 month, 1 week ago
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Michael Quadri started the topic Climate Change and Sickle Cell in the forum Adults With Sickle Cell Disease 1 month, 1 week ago
Have you noticed the effects of climate change in your area?
I have definitely noticed that it is getting much colder than it was in previous years. This could be bad for people with sickle cell as this is more likely to increase exposure to triggers that will cause a crisis.
How do you manage your symptoms in the midst of climate…[Read more]
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Enakhifo Cyprian became a registered member 1 month, 1 week ago
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Michael Quadri replied to the topic Go To Distractions From Sickle Cell in the forum Adults With Sickle Cell Disease 1 month, 2 weeks ago
It’s good that you can find some form of relief in thesw things. @ephraim771 what is your favourite genre of music, or what types of books would you read during a crisis?
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Tito Oye started the topic Working From Home and Sickle Cell in the forum Adults With Sickle Cell Disease 1 month, 2 weeks ago
I work in marketing and thankfully I am able to work from home. This is something that has helped greatly when it comes to managing my health as I have better control over my environment and the triggers I am exposed to.
Do you work from home? If so, what differences have you made to make your home working environment more suitable for your…[Read more]
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Michael Quadri replied to the topic Sharing Hospital Rooms in the forum Adults With Sickle Cell Disease 1 month, 2 weeks ago
I can imagine this experience being a complete invasion of privacy and it may not be the best thing for patients, but unfortunately, many hospitals do not have the resources to accommodate people in individual rooms.
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Michael Quadri replied to the topic Red Cell Exchange Transfusion in the forum Diagnosis Information and General Questions 1 month, 2 weeks ago
Has your experiences with your transfusions changed at all since you started having them?
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Sanusi Halilu became a registered member 1 month, 2 weeks ago
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Michael Quadri started the topic 2023 Highs in the forum Motivational Mondays 1 month, 2 weeks ago
It’s Motivational Monday!
Name at least one good thing that has happened this year so far that you would like to share. This can be health-related or something else.
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Tito Oye replied to the topic Sickle Cell Crisis Pet Peeves in the forum Adults With Sickle Cell Disease 1 month, 2 weeks ago
I could list 100 things, but the first thing that came to mind is the stage where you’ve started to recover from a crisis but you’re not 100% better…maybe only 60%, and that stage of recovery can last forever. It’s very frustrating in my opinion.
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Osei Bonsu replied to the topic Go To Distractions From Sickle Cell in the forum Adults With Sickle Cell Disease 1 month, 3 weeks ago
<p style=”text-align: left;”>For me when I fell a crisis starting, I start to listen to music or read something interesting</p>
And sometimes it brings the pain down - Load More