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the cold weather, can’t be controlled, sometimes even you warm yourself the cold can pass through your body.

yes, it’s very important to stop all electronic devices before 3 hours of sleep time and eat lightly.

Thank you so much Wendell.

Unfortunately, I come to realize that implicit bias plays a major part in my relationship with my mother-in-law.  She is racist and she admits it.  You know how some see us – lazy, ignorant, etc.  She is an educated woman.  She reads more about sickle cell than I do.  She also went with me on an appointment to see my h…[Read more]

The struggle is real…

Thing is, YOU can’t tell her about what we deal with. Someone else will have to inform her.

The problem is, we look okay, even when we are far from okay. On the outside, at least. (Unless we’ve hit that 9/10 pain threshold.) So, whatever you tell her will seem like justifying. A hematologist will be the best source of…[Read more]

Hi Victoria!

I had been wrestling with the idea of quitting my job for three years.  Not because I wanted to but because my body could not handle the stress anymore.  I could not keep working and taking care of myself, of my husband, the house, all at the same time.  I sincerely believe that things became harder for me after my 50th birthday la…[Read more]

Viviane,

what did you end up doing? Leaving work? I have debated to leave my 8-5 job and focus on me and my passions. I fear not being able to help with bills or finances though. Where were you in your decision making? What made you decide to go that way, whatever way you decided?

Victoria,

Thank you for sharing.

What you wrote describes exactly what I used to go through.  Since the incident with my mother-in-law, I made a promise to be true to myself.  I no longer question myself about how I feel.  When I feel well, I do what I can.  When I feel tired or sick, I stay in bed for as long as I need to.  I do not care anym…[Read more]

I am struggling with this myself. It is not that everyone else calls me lazy, but that I am my worst critic. I cannot help it. I am always thinking others think I am lazy or asking myself am I being lazy or am I just sick. I always feel so tired and that I never want to do anything. Sometimes my energy is high and I feel like I can conquer…[Read more]

Happy Sickle Cell Awareness Month for you too Tito,