Updates

November 12, 2019November 12, 2019
Gene-Editing Tool in Ongoing Trial of BIVV003 in Treating Severe Sickle Cell Supported by Early Study

A technique called zinc finger nuclease (ZFN) gene editing technology can be used to modify immature red blood cells — called precursor cells — ... Read more
November 7, 2019November 7, 2019
Delta-aminolevulinate Molecule May Be Potential New Therapy for Sickle Cell Anemia, Study Suggests

Treatment with delta-aminolevulinate (ALA), a precursor of heme — the part of hemoglobin that carries oxygen — could be a future therapy option for ... Read more
November 6, 2019November 4, 2019
Hydration Helps: How to Incorporate Water into Your Daily Routine

It is incredibly important for those of us with sickle cell to stay hydrated. Drinking water promotes healthy blood flow and reduces the chance ... Read more
November 5, 2019November 5, 2019
Inflammation in Airways of Sickle Cell Children Distinct from Asthma Alone, Pilot Study Suggests

White blood cells, especially monocytes, may underlie the breathing difficulties affecting children with sickle cell disease (SCD), a small pilot study suggests. Asthma ... Read more
October 31, 2019October 31, 2019
NIH and Gates Foundation Each Invests $100M to Boost Development of Affordable Gene Therapies for Sickle Cell Disease, HIV

The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to ... Read more

Columns, Her Sickled Journey – a Column by Tito Oye

Managing Sickle Cell While on Holiday
October 30, 2019October 28, 2019
I previously shared my suggestions for someone with sickle cell to prepare for a ...
News

Enhanced Parenting Skills May Help Improve Cognitive Function in SCD Children, Study Suggests
October 29, 2019October 29, 2019
Enhanced parenting skills, including attentive listening and engaging in conversations, may help improve cognitive ...
News

Caraphenol A May Facilitate Faster, More Effective Gene Therapies for Sickle Cell Anemia, Study Says
October 24, 2019October 24, 2019
Caraphenol A — a small molecule closely related to a natural compound called resveratrol, ...
Columns, Her Sickled Journey – a Column by Tito Oye

Tips for Traveling by Airplane with Sickle Cell
October 23, 2019October 21, 2019
In my previous column, I shared my suggestions on the preparations you should consider before ...
News

Voxelotor May Reduce Severity and Number of Leg Ulcers, Trial Analysis Suggests
October 22, 2019October 22, 2019
Voxelotor can reduce the severity of existing leg ulcers and the incidence of new ...
News

Sickle Cell Patients’ Diet Should Be Rich in Selenium, Researchers Say
October 17, 2019October 17, 2019
Insufficient levels of selenium in patients with sickle cell disease (SCD) are associated with ...

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What to Do When Traveling with Sickle Cell
October 16, 2019October 14, 2019
The love I have for traveling is like no other. I love immersing myself ...
UNITY Prenatal Test Uses Maternal Blood to Effectively Screen for SCD, Other Genetic Disorders, Study Says
October 15, 2019October 15, 2019
The prenatal test UNITY, which uses maternal blood samples, is effective in screening for ...
FDA Awards $2M to Phase 2 Trial of Vitamin D for Reducing Risk of SCD Respiratory Complications
October 10, 2019October 10, 2019
How I Recover from a Sickle Cell Crisis
October 9, 2019October 8, 2019
New Viral Vector May Make Gene Therapy for Sickle Cell More Effective, NIH Study Reports
October 8, 2019October 8, 2019
How Diet Can Help Support Sickle Cell Patients: A Nutritionist’s View
October 3, 2019

CDC Expands SCD Data Collection Program to 7 More US States in Effort to Improve Services
October 3, 2019October 3, 2019
The Centers for Disease Control and Prevention (CDC) will share an award total of nearly ...
My Finicky Hygiene Habits Help to Reduce Infection Risk
October 2, 2019September 30, 2019
Special Program Cut Hospital Stays, Improved Well-being of Young Patients with Vaso-Occlusive Crisis, Study Finds
October 1, 2019October 1, 2019
NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
September 27, 2019September 27, 2019

Red Cross Features Thriving Sickle Cell Patient to Increase Blood Donations, Raise Awareness
September 26, 2019September 26, 2019
During National Sickle Cell Awareness Month, the American Red Cross is asking people to consider ...
Don’t Be Shy About Asking to Remain in the Hospital
September 25, 2019September 23, 2019
I Wish My Illness Wasn’t So Invisible
September 24, 2019September 19, 2019

News

Emergency Department Less Likely to Provide Recommended Care for VOEs, Study Finds
September 24, 2019September 24, 2019
Children with sickle cell disease (SCD) who arrive at an emergency department with vaso-occlusive ...
News

‘Sideline Sickle Cell’ Campaign Heads to Detroit to Raise Awareness about the Disease
September 19, 2019September 19, 2019
A community town hall is set for Detroit to raise awareness about sickle cell ...
News

Hypertension Medication Valsartan May Help Prevent Vaso-Occlusive Episodes in Sickle Cell Disease, Study Suggests
September 17, 2019September 17, 2019
A medication used to treat high blood pressure, called valsartan, may help decrease the ...
News

Walks, Blood Drives Among Activities Marking Sickle Cell Awareness Month
September 12, 2019September 12, 2019
From walks to blood drives, a host of activities and efforts are marking this ...
Columns, Her Sickled Journey – a Column by Tito Oye

Sickle Cell 101: Addressing Common Questions About My Blood Disorder
September 10, 2019September 9, 2019
Ed. note: Welcome to the new column, “Her Sickled Journey,” by Tito Oye. Living ...
News

Voxelotor Before FDA for Approval as Possible Disease-modifying Treatment for Sickle Cell
September 10, 2019September 10, 2019
The U.S. Food and Drug Administration (FDA) is giving priority review, as requested, to Global ...
News

8th Annual SCD Therapeutics Conference Set for Sept. 10
September 5, 2019September 5, 2019
Taking place during National Sickle Cell Awareness Month, the 8th Annual Sickle Cell Disease ...
News

Sickle Cell Trait Doesn’t Predict Cognitive Decline in African Americans, Study Finds
September 3, 2019September 3, 2019
African Americans who inherit one sickle cell gene and one normal gene — a ...
News

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases
September 2, 2019September 2, 2019
Rare diseases deeply affect not only the children who experience them, but also their ...

October 25, 2016October 25, 2016

Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows

News

National and local policies have led to large reductions in lead poisoning cases overall in the U.S., but severe cases are still common among children. Recently, researchers at the New York City Department of Health and Mental Hygiene (DOHMH) investigated sources of exposure, risk factors, and ... Read more