In recognition of Sickle Cell Disease Awareness Month in September, the Sickle Cell Disease Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by sickle cell disease, written in their own words. Follow us on Facebook, Instagram, or X for more…
Discussion
As Sickle Cell Awareness Month winds down, it’s worth recognizing the vital role that employment can play in the long-term health and well-being of disabled people. Work provides far more than a salary. It offers independence, purpose, routine, social connection, and opportunities for growth. However, these benefits are only truly…
Discussion
A researcher at the University of Cincinnati has received more than $550,000 in grant funding to study what drives bone damage and chronic pain in people with sickle cell disease (SCD). The funding was awarded to Jahnavi Gollamudi, MD, a research assistant professor at the University of Cincinnati College…
Discussion
Lately, I’ve been thinking about how my experiences with sickle cell disease influence my decisions when I feel pain, such as how quickly I reach for medication. When I was younger, I might have waited until my pain reached a 7 or 8 on the pain scale before doing…
Discussion
My first two children, Tyson and Jordyn, were born in 2013 and 2015, respectively, with sickle cell disease type HbSS. Tyson was diagnosed about a week after birth. The doctors called me and told me I needed to bring him in for his first hematology appointment. After that…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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