As a graduate school student, I’ve come to realize that summer months and holidays are the best times for me to travel. I have a lighter schedule that allows me to travel home to see my parents, visit with friends, or go somewhere new. However, since the development of new…
Discussion
The U.S. Food and Drug Administration (FDA) has extended the review period for mitapivat as a potential treatment for sickle cell disease (SCD), with a decision now expected by Feb. 1, 2027. The delay follows the FDA’s request for additional information to determine whether a Risk Evaluation and…
Discussion
One of the most challenging things about living with sickle cell disease is that, despite the planning, preparation, and precautions we patients take, a crisis or a pain episode can still unexpectedly happen. Sometimes, even when we do everything right to look after ourselves, our bodies remind us that…
Discussion
I tell my children that we are a family that makes really good lemonade. Meaning, when life gives us something difficult or sour, we have an uncanny ability to turn it into something positive or sweet. I believe that is mostly due to the skills we have acquired while battling…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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