In the U.S., doctors who care for people with sickle cell disease (SCD) often don’t have a clear understanding of what motivates patients to participate in clinical trials, according to a survey-based study called LISTEN. Based on the findings, researchers offered a range of suggestions for how doctors can…
Discussion
Years ago, I mistook a pulmonary embolism for what I thought was a minor sickle cell disease vaso-occlusive pain crisis, a mistake that could easily have proved fatal. I promised myself afterward that I would never trivialize my symptoms again. As it turns out, that’s easier said than done.
Discussion
What began as a season of devastating complications, uncertainty, and hopelessness unexpectedly became the pathway to purpose and career diversification for me. Toward the end of 2017, my life changed abruptly. I developed bilateral subchondral fractures in my knees due to complications of sickle cell disease. Almost overnight, I…
Discussion
CSL is investigating two potential new treatments for sickle cell disease: An injected monoclonal antibody designed to prevent pain crises by reducing the neutrophil levels in the blood: Researchers are studying whether the monoclonal antibody treatment can decrease the number of pain crises and reduce the chances of long-term injury…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
Get regular updates to your inbox.
