In recognition of Sickle Cell Disease Awareness Month in September, the Sickle Cell Disease Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by sickle cell disease, written in their own words. Follow us on Facebook, Instagram, or X for more…
Discussion
My first two children, Tyson and Jordyn, were born in 2013 and 2015, respectively, with sickle cell disease type HbSS. Tyson was diagnosed about a week after birth. The doctors called me and told me I needed to bring him in for his first hematology appointment. After that…
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Healthcare professionals and patient representatives from Cyprus, Greece, and Italy are joining forces in a regional initiative aimed at improving care for people with hemoglobinopathies, inherited blood disorders that include sickle cell disease (SCD) and thalassemia. The Mediterranean Network for Haemoglobinopathies (MNfH), recently launched in Rome, aims to address…
Discussion
When I joined Bionews, the publisher of this website, in 2023 as a freelance sickle cell disease (SCD) columnist, I experienced something that stayed with me. As someone living with a rare disease, I wasn’t the only person like me in the workplace. Several colleagues also lived with chronic…
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Among children with sickle cell anemia (SCA) and cerebral macrovasculopathy (CV), or disease affecting the brain’s large and medium-sized blood vessels, age at CV diagnosis, the severity of blood vessel narrowing, and bronchial obstruction independently predicted CV reversal. In this long-term follow-up study of 50 children receiving regular blood…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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