A sickle cell crisis isn’t a polite guest, and it often arrives unannounced. Over the years, I’ve learned that my crises either come on suddenly or build gradually, with subtle clues or a red alert. Recognizing these warning signs of a sickle cell pain crisis early is the first…
A bipartisan team of U.S. senators has introduced legislation to renew funding for a national initiative that connects people with blood disorders such as sickle cell disease (SCD) with unrelated donors for stem cell transplants. If the legislation passes, the national initiative, known as the C.W. Bill Young Cell…
Adults with sickle cell disease (SCD) face a substantial risk of stroke, most often in their 30s and 40s, with lasting physical disability and cognitive impairment, a new study reports. Also, despite recommendations, few patients received blood transfusions shortly after stroke, underscoring “significant gaps in acute stroke management,”…
Hematologists-oncologists who specialize in sickle cell disease (SCD) report higher levels of burnout than those not specializing in SCD, even though no differences in grit and resilience were found between the two groups, according to a nationwide U.S. study. The study surveyed more than 150 hematology-oncology doctors, who are…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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