People with sickle cell disease (SCD) who live in sub-Saharan Africa are less likely than those in other countries to use common medications to manage the condition, including over-the-counter pain-relieving medicines, a study found. These patients also tended to report a lower perceived disease burden than those in high-income…
Discussion
The quiet, creeping isolation that comes with living with sickle cell disease is a reality we rarely discuss enough. When you live with a moderate to severe form of the condition, isolation becomes a recurring part of your existence. Through lived experience, I have learned that this isolation is…
Clinician bias toward people with sickle cell disease (SCD) may be tied to stigma around opioid use, rather than race or chronic pain alone, a new study suggests. “Although patients with sickle cell disease routinely use opioid medications to manage their chronic pain, the vast majority do not…
Discussion
Having a remote job has been a game-changer for me as someone with sickle cell disease. I’m better able to manage my health — no rushed mornings, cold commutes, or physical strain. I can plan my day to suit my body, whether that means resting, going to the gym,…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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