One of the most challenging things about living with sickle cell disease is that, despite the planning, preparation, and precautions we patients take, a crisis or a pain episode can still unexpectedly happen. Sometimes, even when we do everything right to look after ourselves, our bodies remind us that…
Discussion
I tell my children that we are a family that makes really good lemonade. Meaning, when life gives us something difficult or sour, we have an uncanny ability to turn it into something positive or sweet. I believe that is mostly due to the skills we have acquired while battling…
Discussion
Recently, I’ve been receiving international professional opportunities, which have made me think about a question I’ve avoided for years: What would I do if an opportunity I’ve always dreamed about required me to travel abroad by airplane? What happens when one of your greatest career dreams comes within reach, but…
Discussion
A novel gene therapy for sickle cell disease (SCD), designed to modify blood stem cells without the need to remove and transplant them back into patients, showed proof-of-concept results in humanized mice, a study found. “Comprehensive [non-human primate] studies will be required to assess safety, biodistribution [how the therapy…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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