I missed another birthday celebration and had to send another “sorry, I can’t make it” message — not because I like canceling on people, but because I have sickle cell disease. Living with sickle cell means living with FOMO — the fear of missing out. I must budget…
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Keeping a job while living with sickle cell disease (SCD) can be challenging, especially when you have moderate to severe disease. Symptoms and complications can make it harder to maintain regular work hours or remain in a demanding career. For many warriors, unemployment and financial hardship can add to…
Discussion
Note: This column describes the author’s own experiences with an array of treatments. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Ordinarily, like many other people living with sickle cell disease, I take daily medications to help manage my…
Discussion
Genetix Biotherapeutics is teaming up with the National Football League Alumni Association for a campaign to increase awareness of one-time genetic treatments for sickle cell disease (SCD). “Despite hundreds of patients now treated, the vast majority of eligible patients remain untreated, primarily due to lack of awareness that…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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