When I received a stem cell transplant in 2019, I was given something I had dreamed about for more than three decades: the chance to live without sickle cell disease. My brother was my donor, and because he was a perfect match, the transplant process was a success. For…
Discussion
“We lost a gentle soul yesterday. Rest warrior Daryl Rosborough.” Reading that sentence as I checked my Facebook first thing in the morning felt like a ton of bricks crashing down on me. Daryl was more than a friend; he was like an older brother to me. Sadly, he…
Discussion
Can people who don’t have sickle cell disease (SCD) advocate for the community? Absolutely. However, I think there is an important distinction that deserves attention. Usually, most advocates are patients, caregivers, healthcare professionals, or family members of people living with the disease. However, I’ve recently seen an influx of…
Discussion
The first participant has now been dosed in a global clinical trial designed to confirm the benefits of mitapivat, an oral therapy under regulatory review in the U.S. for the treatment of sickle cell disease (SCD), its developer Agios Pharmaceuticals announced. The U.S. Food and Drug Administration (FDA)…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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