In recognition of Sickle Cell Disease Awareness Month in September, the Sickle Cell Disease Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by sickle cell disease, written in their own words. Follow us on Facebook, Instagram, or…
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Advocacy groups across the U.S. are hosting events throughout September to mark Sickle Cell Awareness Month. The month has been recognized since the 1980s as a time to raise awareness about sickle cell disease (SCD), a genetic disorder that affects red blood cells. This year, advocacy groups including the…
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If you’ve read my columns, you know how much I praise and appreciate my support system. Everyone close to me knows I have sickle cell disease, so I rarely have to explain it or worry that they’ll panic about my health. They see me regularly, and I’ve learned to…
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I missed another birthday celebration and had to send another “sorry, I can’t make it” message — not because I like canceling on people, but because I have sickle cell disease. Living with sickle cell means living with FOMO — the fear of missing out. I must budget…
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Keeping a job while living with sickle cell disease (SCD) can be challenging, especially when you have moderate to severe disease. Symptoms and complications can make it harder to maintain regular work hours or remain in a demanding career. For many warriors, unemployment and financial hardship can add to…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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