Recently, I doubted I’d be able to write this column. My knees had become swollen, immovable, and painfully untouchable. The slightest movement sent sharp pain through my body. Just sitting up was difficult, let alone writing. The episode began with malaria, which I had treated the previous week. Soon after,…
Newer oral anticoagulants, or blood thinners, were linked to a lower risk of clinically relevant nonmajor bleeding than warfarin, an older blood thinner, in adults with sickle cell disease (SCD) treated for dangerous blood clots, according to a study led by researchers in Saudi Arabia. However, no significant differences…
Casgevy (exagamglogene autotemcel) will be reimbursed by Germany’s public health system, enabling people with severe sickle cell disease (SCD) in the country, ages 12 and older, to access the one-time gene-editing therapy at low or no cost. The reimbursement agreement, established with Vertex Pharmaceuticals — which developed…
Sickle cell disease (SCD) hospitalization patterns vary across New York State, with New York City showing the largest share of hospitalizations and Long Island reporting the highest charges for care, a recent study showed. In addition, longer hospital stays were seen in regions where access to specialized care may…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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