Casgevy (exagamglogene autotemcel) will be reimbursed by Germany’s public health system, enabling people with severe sickle cell disease (SCD) in the country, ages 12 and older, to access the one-time gene-editing therapy at low or no cost. The reimbursement agreement, established with Vertex Pharmaceuticals — which developed…
Sickle cell disease (SCD) hospitalization patterns vary across New York State, with New York City showing the largest share of hospitalizations and Long Island reporting the highest charges for care, a recent study showed. In addition, longer hospital stays were seen in regions where access to specialized care may…
Discussion
First in a series. If you’ve read my recent columns, you’ll know I’ve been in a really good place with my health as someone with sickle cell disease. I credit a lot of that to the work I’ve been putting in at the gym to strengthen my body.
A discovery about red blood cells could have implications for sickle cell disease (SCD) and other blood disorders marked by problems with hemoglobin, the protein red blood cells use to carry oxygen through the bloodstream. Scientists found that red blood cells growing under stressful conditions can import heme, an…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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