In recognition of Sickle Cell Disease Awareness Month in September, the Sickle Cell Disease Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by sickle cell disease, written in their own words. Follow us on Facebook, Instagram, or…
Discussion
Last week, every deep breath brought excruciating chest pain that felt as though my ribs were crashing into one another. The symptoms reminded me of acute chest syndrome, a serious sickle cell disease (SCD) complication I have rarely discussed on my platform. As I recovered, I found myself thinking…
Discussion
As Sickle Cell Awareness Month winds down, it’s worth recognizing the vital role that employment can play in the long-term health and well-being of disabled people. Work provides far more than a salary. It offers independence, purpose, routine, social connection, and opportunities for growth. However, these benefits are only truly…
Discussion
A researcher at the University of Cincinnati has received more than $550,000 in grant funding to study what drives bone damage and chronic pain in people with sickle cell disease (SCD). The funding was awarded to Jahnavi Gollamudi, MD, a research assistant professor at the University of Cincinnati College…
Discussion
Lately, I’ve been thinking about how my experiences with sickle cell disease influence my decisions when I feel pain, such as how quickly I reach for medication. When I was younger, I might have waited until my pain reached a 7 or 8 on the pain scale before doing…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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