What began as a season of devastating complications, uncertainty, and hopelessness unexpectedly became the pathway to purpose and career diversification for me. Toward the end of 2017, my life changed abruptly. I developed bilateral subchondral fractures in my knees due to complications of sickle cell disease. Almost overnight, I…
Discussion
CSL is investigating two potential new treatments for sickle cell disease: An injected monoclonal antibody designed to prevent pain crises by reducing the neutrophil levels in the blood: Researchers are studying whether the monoclonal antibody treatment can decrease the number of pain crises and reduce the chances of long-term injury…
Discussion
The U.S. Food and Drug Administration (FDA) has granted priority review — a decision that could speed a drug’s approval — to an application for the oral therapy mitapivat for sickle cell disease (SCD). According to developer Agios Pharmaceuticals, mitapivat, if approved, will be the first therapy of…
Discussion
One of the hardest things about growing up with sickle cell disease wasn’t the pain. It was the limitations — not just those imposed by the condition itself, but also from other people’s expectations. Like many patients, I grew up hearing what I couldn’t do. The conversations weren’t always…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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