One thing I’ve always wanted to achieve, despite living with sickle cell disease (SCD) and experiencing multiple complications, is financial independence. I wanted to earn my own income, make my own financial decisions, contribute to my family’s needs, and afford things that make life meaningful to me. However, achieving…
Discussion
Diagnostics company Orasure Technologies has joined the World Coalition on Sickle Cell Disease, an international public-private partnership that works to improve care for people affected by sickle cell disease around the globe. “We are proud to join the World Coalition on Sickle Cell Disease and work alongside people…
Discussion
As a graduate school student, I’ve come to realize that summer months and holidays are the best times for me to travel. I have a lighter schedule that allows me to travel home to see my parents, visit with friends, or go somewhere new. However, since the development of new…
Discussion
The U.S. Food and Drug Administration (FDA) has extended the review period for mitapivat as a potential treatment for sickle cell disease (SCD), with a decision now expected by Feb. 1, 2027. The delay follows the FDA’s request for additional information to determine whether a Risk Evaluation and…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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