School Staff Lacks Knowledge about Sickle Cell Disease, Student Survey Finds
Students with sickle cell disease (SCD) feel that educators and administrators at their schools lack knowledge about SCD management — an issue that ... Read more
Updates
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Phase 1 Trial to Test Under-the-Skin Injection of Sevuparin in Sickle Cell Patients
Modus Therapeutics is going to launch a Phase 1 clinical study in the United States to evaluate the potential of its lead candidate sevuparin ... Read more -
Virtual Reality Program May Provide Effective Relief From Pain for SCD Patients, Study Suggests
A virtual reality program designed to provide a distraction from pain may be an effective complementary therapy for children who are hospitalized for a ... Read more -
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from ... Read more -
Emmaus-sponsored ASCAT Conference Outlines Latest Sickle Cell Advances
Healthcare professionals, scientists and field experts learned about the latest advances in the diagnosis and treatment of sickle cell and related disorders at the ... Read more
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HemoType SC is a Fast, Inexpensive Diagnostic Tool for Sickle Cell Disease Screening, Study Shows
The diagnostic test HemoType SC is a viable option for the highly sensitive, specific, inexpensive, ... -
Marijuana Use Common in Sickle Cell Patients, Highlighting Need for More Research, Study Shows
Many sickle cell disease (SCD) patients use marijuana for its medicinal benefits, according to an anonymous ... -
Crizanlizumab Lowers Pain Crises in At-risk Sickle Cell Patients, Ad-hoc Trial Data Show
Novartis’ investigational therapy for sickle cell disease (SCD), crizanlizumab (SEG101), was seen to reduce ... -
Multi-Organization Partnership to Encourage Blood Donation and SCD Awareness
A five-year partnership among The Sickle Cell Disease Association of America (SCDAA), the Sickle Cell ... -
Agreement With Cardinal Health Widens Distribution of Endari for Emmaus
A major distribution agreement with Cardinal Health will make Endari (L-glutamine) available in pharmacies nationwide ... -
Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ...
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Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows
News
National and local policies have led to large reductions in lead poisoning cases overall in the U.S., but severe cases are still common among children. Recently, researchers at the New York City Department of Health and Mental Hygiene (DOHMH) investigated sources of exposure, risk factors, and ... Read more