Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose ... Read more
Updates
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SCD Experts Call for Routine Screening Among Migrants
Backed by a new study suggesting that sickle cell disease (SCD) is common among refugees in Southern Europe, some hematologists are calling for ... Read more -
Cognitive Function May Be Affected in Adults with Sickle Cell Disease, Study Suggests
Adults with sickle cell disease score worse than their healthy, unaffected siblings on cognitive tests, despite treatment with hydroxyurea, a study reports. The ... Read more -
CIRM and NHLBI Collaborating to Fund Cell and Gene Therapies for Sickle Cell Disease
The California Institute for Regenerative Medicine (CIRM) and the National Heart, Lung and Blood Institute (NHLBI) have entered into a “landmark” collaboration to co-fund ... Read more -
Findings on Abnormal Hemoglobin Assembly Could Lead to Lower-Dose SCD Medications, Researchers Say
A study of sickle cell disease (SCD) at the molecular level found abnormal hemoglobin molecules assemble much faster and less efficiently than previously ... Read more
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Holistic Treatment Approach May Help Heal Long-Lasting SCD-Related Skin Ulcers, Case Report Shows
A newly developed treatment approach, known by the acronym SICKLE, was shown to be ... -
More Online Queries in Winter Suggest Seasonal Variations in SCD Activity
More people search for information on sickle cell disease (SCD) during winter than summer, indicating ... -
Nonprofit Group Works to Raise Rare Disease Awareness in India
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years ... -
NFL Broadcaster Huddles With Emmaus to ‘Sideline Sickle Cell’ Disease
In an effort to raise awareness about the latest in sickle cell disease therapy, ... -
Loma Linda Hospital ‘Effecively Cures’ Girl Using Stem Cells Transplanted from Dad, Report Says
Clinicians at the Loma Linda University Children’s Hospital successfully performed that institute’s first stem cell transplant, and ... -
Low Oxygen Regions in Brains of Sickle Cell Patients are Prone to Small Strokes, Study Shows
Sickle cell disease patients experience silent strokes in the deep white matter of the ...
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Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows
News
National and local policies have led to large reductions in lead poisoning cases overall in the U.S., but severe cases are still common among children. Recently, researchers at the New York City Department of Health and Mental Hygiene (DOHMH) investigated sources of exposure, risk factors, and ... Read more