Updates

August 11, 2020August 11, 2020
Parallel, Pitt Team Up to Study Medical Marijuana for Treating SCD Symptoms

The cannabis company Parallel, which aims to improve quality of life with its products, has launched a 10-year collaboration with the University of Pittsburgh, known ... Read more
August 10, 2020August 10, 2020
New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a ... Read more
August 7, 2020August 5, 2020
What Not to Say to Someone With Sickle Cell

Have you ever informed somebody of your diagnosis and found their response to be a little annoying? I often have. I try to extend ... Read more
August 6, 2020August 6, 2020
Nearly $1M Grant to Support Work Into Reactivating Fetal Hemoglobin

The National Heart, Lung, and Blood Institute (NHLBI) awarded nearly $1 million to Athena Starlard-Davenport, a professor at the University of Tennessee Health Science ... Read more
August 5, 2020August 3, 2020
So, What Is Sickle Cell Disease Again?

In the U.K., approximately 15,000 people have sickle cell disorder and approximately 240,000 have the sickle cell trait. Despite these high numbers, I only meet ... Read more

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October 25, 2016October 25, 2016

Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows

News

National and local policies have led to large reductions in lead poisoning cases overall in the U.S., but severe cases are still common among children. Recently, researchers at the New York City Department of Health and Mental Hygiene (DOHMH) investigated sources of exposure, risk factors, and ... Read more

Updates

Parallel, Pitt Team Up to Study Medical Marijuana for Treating SCD Symptoms

New Streaming Channel Showcases Rare Disease Films

What Not to Say to Someone With Sickle Cell

Nearly $1M Grant to Support Work Into Reactivating Fetal Hemoglobin

So, What Is Sickle Cell Disease Again?

‘Be The Match’ Urges Blacks to Join Donor Registry for Sickle Cell Patients

Distress Evident in Parents Caring for Teens with Sickle Cell, Survey Finds

How Lockdown Has Affected My Weight

CHMP Gives Positive Opinion to Adakveo for Treating Vaso-occlusive Crises in SCD Patients

Emergency Care Often Not Ideal for Sickle Cell Patients in US, Survey Finds

A Message to Parents Expecting a Child With Sickle Cell

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Cannabis Seen to Help Ease Pain in Sickle Cell Patients in Small Study

Staying at Home Has Helped Me Follow a Healthier Routine

Umbilical Cord Blood Transplant Treats Children With Genetic Disorders, Trial Finds

Avoid Using the Internet to Self-diagnose

Stem Cell Transplant from Unrelated Donors Holds Promise for SCD Patients, Study Suggests

Bronchodilators to Treat Asthma May Worsen Youngsters’ SCD, Study Suggests

Heat Waves Can Exacerbate My Sickle Cell Symptoms

Potential Oral DMT Showing Safety and Signs of Efficacy in Phase 1 Trial

7th Annual Walk With the Stars & Move-A-Thon Kicks Off July 11 to Fight SCD

Finding My ‘New Normal’ as Lockdown Restrictions Ease

GBT to Request Oxbryta’s Approval in Europe for SCD Patients 12 and Older

Mitapivat Safely Increases Hemoglobin Levels in SCD Patients, Phase 1 Trial Shows

On World Blood Donor Day, I Thanked Blood Donors Everywhere

First SCD Patient Treated With CTX001 Remains VOCs-free After 9 Months, Trial Results Shows

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Here Are Ways to Help Friends with Sickle Cell Disease

World Sickle Cell Day Celebrates Patients, Raises Awareness

Let’s Celebrate World Sickle Cell Day by Focusing on Our Achievements

Bluebird Bio Presents Data from LentiGlobin Gene Therapy Trial

Listening to Sickle Cell Patients Is Crucial During a Crisis

GBT to Request That Oxbryta Treat Children Starting at Age 4

Sickle Cell Takes a Toll on My Veins

Kids with Sickle Cell Disease at Risk for Lead Poisoning, NYC Study Shows