In recognition of Sickle Cell Disease Awareness Month in September, the Sickle Cell Disease Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by sickle cell disease, written in their own words. Follow us on Facebook,…
Discussion
When I was younger, I hated taking medication. It didn’t sit well with me that I had to take it for something I never asked for. Having to do it every day was particularly difficult, and when it came to managing pain, the size of some of the tablets and…
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A research team at the Icahn School of Medicine at Mount Sinai has received a $4.1 million grant to investigate how everyday environmental exposures — from air pollution and temperature to food, housing, and stress — may affect the health of people with sickle cell disease (SCD). The five-year…
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Hospital admissions can feel overwhelming when you live with sickle cell disease (SCD), regardless of where you receive care. Here in Nigeria, the experience can differ from what someone might see in the United States, but the emotional weight of an admission can feel remarkably similar. Research commonly identifies…
Discussion
I’ve loved September for as long as I can remember because it is Sickle Cell Awareness Month. At age 7, I attended Camp Jubilee, a weeklong summer camp for children with sickle cell disease. There, I learned we had our very own awareness month. As if being surrounded by…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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