Base

Nickname

hephzybah-russell
Age

1955
Gender

Female
Location (Country/State)

United States
What best describes you?

Family
Short Bio

Yesterday, my guide son was buried due to Sickle Cell complications during his final crisis on New Years morning.  He lives behind two children also having Sickle Cell and my mission is to find a way to get Niprisan available to all Sickle Cell Warriors without the high cost of Xickle.
How did you hear about us?

Facebook
How long have you or the person you are caring for had Sickle Cell Disease?

most of his 40 years of living
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