Maryam Jawad

Thank you all for your valuable information and time for writing for me your experiences, This really meant  a-lot for me. I am really desperate and lost to be honest, I want my child to have this life without any worries or fear that the next day he will not be able to smile of pain. But, in the same times I am a worried mother that i will cause…[Read more]

Hello, hoping you are doing well as well dear :)yes maybe that’s what we are going to do , we modify his diet and hydration more after his last crisis and we are observe how’s that work for him.Thank you, stay safe

Yeah , the age issue for me is another thing to worry about. The doctor wants to start it not because of things happening now but to be prepared that things will not happen more in future so as a proflaxes. Thanks alot for these info, stay safe

Thank you brother and may god protect you always. Yes, we are currently observing how’s the health of his goes until his appointment with his hematologist appointment. They are suggesting the drug for him but I am still not sure that he need it the most that I will make him face the risk of having drug side effects as he have just start showing s…[Read more]

Very sorry for your loss and may his soul Rest In Peace. I would thank you for your reply and the information that you gave. Yes, for sure its got his good and bad even if its could make a-lot of complications, its may save someone life either. Hoping to reach for an answer.

As a mother of SCD warrior my most important items while traveling will be his water bottle with his medication bag for any emergency. I make sure about the weather in that specific place so i know what to take as extra clothes.