Leola Conley replied to the topic Is Time Really A Healer? in the forum Adults With Sickle Cell Disease 1 year, 8 months ago
In my opinion not. I am a parent of a 22 year old who has SS. I feel that there are just some things that time cannot heal. You learn to adapt, accept, and get through it. But in your friend’s case I am sure there will always be some hurt that she/he can no longer get a stem cell transplant. She or he were so looking forward to beginning a lif…[Read more]
Leola Conley replied to the topic Distress Evident in Parents Caring for Teens with Sickle Cell, Survey Finds in the forum Diagnosis Information and General Questions 2 years, 7 months ago
No not at all. I am the parent of a 21 year old with SS. I love her more than anything as she is a joy to me, but life has always been stressful trying to work and make sure I was always there for her. She is a college student now and I still worry about her health as she seems to down -play the seriousness of her disease.
Leola Conley replied to the topic Are there opportunities for clinical trials for Africans with SCD? in the forum Clinical Trials 2 years, 7 months ago
<p style=”text-align: left;”>Faith, I am the mother of a 21 year old daughter who has SS. She is a senior in college. I always pray for God to help everyone who has to deal with this disease. There seems to be an upsurge in the development of new medicines recently. My daughter has been put on Oxbryta just recently by her doctor. I am pra…[Read more]
Leola Conley became a registered member 2 years, 8 months ago