Steve M

If you don’t fight you wouldn’t be here now every time you get a crisis you fight it.. how? Well you start drinking more fluids taking pain killers, using heating blankets, resting more etc… if you don’t fight you won’t make it you won’t survive try not to do all this and see what happens or try not to take care of yourself on daily basis.
Yo…[Read more]

To be honest I do not know anyone that has SCD other than my uncle I found this group a couple of moths ago and I like reading what everyone here feels or has suffer but I wish I could know personally some other people with sickle cell idk to talk and share experiences and maybe help each other when needed because nobody knows how we feel on daily…[Read more]

In my case yes I’m ok with warrior because yes we fight a huge fight every day because is not like we only worry when we are in pain we have to take care of our health everyday single day…  we go through crisis, infections, organ damages, surgeries, blood transfusions   We miss family meetings important occasions etc… I think we all know tha…[Read more]

Oh this is a good one.
I use to be fine before I use to eat well 3 or more times a day but now I can eat one meal (lunch) and call it a day

morning= coffee

lunch= meal

dinner= coffee

terrible my fam gets concern why I’m not eating if I’m not in pain or anything but I’m just not hungry and there is one more thing that affects my food intak…[Read more]

I just try to wear warm cloth and bottoms be outside if not necessary

Hello, I have never used oxygen other than when in the hospital with a crisis but yes I have been adivise to carry one if I go to some places in high levels so I refuse to do that I rather not travel to places over the sea level idk if anyone has been told to stay at the sea level and warm places

Hello Everyone, this is what I do when a crisis is going to hit I start feeling extremely tired for few days also I feel pressure on my lower jaw I know I’m going to get a crisis so I start drinking more fluids and resting a day or two this helps me sometimes but only to space it out for a few days no matter what I still get it…

Now when I g…[Read more]

Hi Tito I have an appointment on October 19th hopefully won’t be nothing serious I’m scared of what can it be but I’m a warrior and a survivor so whatever it is I’ll fight it.

I’ll let you guys know what the Doctor says

Wow Viviane Salzman I just read your letter and I can relate all of it with my life I have had so many health issues that is crazy and yes sickle cell is a monster it’s the worst in all ways..

Thank you for sharing this letter with us. Stay safe and healthy

<p style=”text-align: left;”>When I was growing up I use to want to be a doctor that was my dream so I started school for it but unfortunately I couldn’t do it sickle cell was to much to handle I missed clases a lot so I failed.. Then I thought about doing nursing but been in the hospital so many times I decided not to because I knew I would h…[Read more]

Hi everyone, I have done different jobs in my life But having sickle cell has been really hard cause when I get a crisis I missed work and had problems sometimes got fired or I just quit but now I am a barber I decided to get into this field because I can make my on schedule and I can keep up with it easier it has work for me a lot, 5 years so far…[Read more]

Thank you Kisha T. I’ll look in to it.

Let’s see we’ll since sickle cell talks I have learn how to listen and understand my body I used to feel tired but I kept going pushing myself basically I didn’t want to listen what my body was saying and always ending in a crisis or hospitalization so now I do listen and when I feel that way I take it easy, stay home, rest, drink lots of fluid…[Read more]

Yes of course it is United Health Care  (HCA) never had any problems with this insurance

Please do if you or anybody has one of find one let us know… thank you..

All I can say is that Sickle Cell made me a really strong guy I fight with this thing everyday sometimes I win sometimes I don’t but I never give up and I will never do it. Some days are better than others and worst too but we have to keep going we got this…

Hi Tito, it’s hard to give up on things we like but it’s for the best

I had to stop riding my bike since I was a 10 years old because every single time I got on it the next day I Started feeling bad or already in a crisis. I never could play Soccer or run simple things you do as a kid or teenage.

Hi Rodney, well mine is not to good because idk why but I have being losing my appetite a year ago I eat only 2 times daily and sometimes only 1 my stomach gets full easy and it takes time for me to get hungry again.