@virus
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Kassem Banawer replied to the topic Go To Distractions From Sickle Cell in the forum Adults With Sickle Cell Disease 2 months ago
For me Tito during pain management period if i can set there are many things can distract me like watch movies or playing games or reading , but if i’m still in pain nothing can distract me in this case i need to take rest and sleep until the pain cool down.
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Kassem Banawer replied to the topic Just a Little Bit of Me Time in the forum Adults With Sickle Cell Disease 2 months, 1 week ago
@Michael now i’m playing the COD Warzone 2.0 on my PC, it’s still new release and i see that game is good to play with friends which having lots of fun and isolation of bussy world
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Kassem Banawer replied to the topic Working through a sickle cell crisis in the forum Adults With Sickle Cell Disease 2 months, 3 weeks ago
I don’t think @Michael i can do anything during my hard crisis because my pain completly control all my body even if you take a good pain killer you have to take rest or i will face more pain, at the end the crisis make my body out of control that because should be someone close to you and take care for your responsibilities like my wife of any…[Read more]
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Kassem Banawer replied to the topic Just a Little Bit of Me Time in the forum Adults With Sickle Cell Disease 3 months ago
<span class=”ContentPasted0″>I’m same @Michael when leaving stress world of work and responsibilities just goes to my private world like playing online games with my friends watching movies</span><span class=”ContentPasted0 ContentPasted1″> eating light snacks and I love to be quiet sometimes like drop my mind into empty space no sound no noise n…[Read more]
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Kassem Banawer replied to the topic Maintaining Good Health in the forum Sickle Cell Disease Awareness 3 months ago
Breakfast @Michael is the most important meal of the day because it’s the starting power of your body engine, for me sleep is the most thing I really want doing more, my sleep rate is not enough its only 5 to 6 hours maximum during work days, I’m sure I need more because I feel tired most of the time.
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Kassem Banawer replied to the topic Racism & Sickle Cell / Racism in Healthcare in the forum Diagnosis Information and General Questions 3 months, 2 weeks ago
there is no racism like this where i live, it would be very bad really.
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Kassem Banawer replied to the topic Carers Support During a Sickle Cell Crisis in the forum Parents and Caregivers 3 months, 2 weeks ago
No problem @viviane its ok I totally understand that some of people can’t feel your pain but as you said hope all go well in the future.
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Kassem Banawer replied to the topic Carers Support During a Sickle Cell Crisis in the forum Parents and Caregivers 3 months, 2 weeks ago
I hope @viviane hospitals follow procedures which should be registered in our profiles mentioned that we are SCD patients so we need special care and our admission would be more easy, at least if your crisis is high you have no choice you need an opioid dosage or you will get heart attack like what happened to me once because I had a high level of…[Read more]
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Kassem Banawer replied to the topic Carers Support During a Sickle Cell Crisis in the forum Parents and Caregivers 3 months, 3 weeks ago
<div class=”elementToProof”>
<p class=”ContentPasted0 ContentPasted1″>yes sure @Michael my advice to carers (just give me my morphine dosage and i will be fine) hehehehehe LOL</p></div>
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Kassem Banawer replied to the topic Making Hospitalizations More Comfortable in the forum Adults With Sickle Cell Disease 3 months, 3 weeks ago
yes @Tito I don’t like to go hospital but some of high-level crisis can’t be handled at home so as you said to make my stay conferrable, I should take my personal items like light pajamas and lots of underwear also my electronics like phone charger.
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Kassem Banawer replied to the topic Useful Items to Help with the Cold? in the forum Adults With Sickle Cell Disease 4 months, 2 weeks ago
Usually in winter season i don’t like heat direct on my body or heavy thinks over me or even electric blanket sheet on my bed this make my sleep uncomfortable, i think you can use this blanket if your bedroom is not warm enough so you can make the bed warm it’s a very good idea, but for me i have like the down below wall heater which i bought…[Read more]
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Kassem Banawer replied to the topic Breakfast Meal Suggestions in the forum Adults With Sickle Cell Disease 4 months, 2 weeks ago
thanks @tito
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Kassem Banawer replied to the topic Breakfast Meal Suggestions in the forum Adults With Sickle Cell Disease 4 months, 3 weeks ago
For me I can’t start my day if I didn’t take my breakfast which is very important to me as lunch should be intime also dinner in time, 3 moderate meals every day, this is my routine, but sometime if I late to lunch, at night i will eat some fruits or salad.
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Kassem Banawer replied to the topic Sleeping Tips During Flares? in the forum Adults With Sickle Cell Disease 4 months, 3 weeks ago
Usually, I’m not taking enough time for sleep during working days about 5 to 6 hours maximum but at weekend I’m taking much time about 9 to 10 hours sleep, I know that’s is not perfect sleep routine, I can’t sleep early every day.
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Kassem Banawer replied to the topic What is the most effective medicine/treatment you use or have used to date? in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
It’s Good to hear that @Ada, God bless you.
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Kassem Banawer replied to the topic What’s Clinical Trial Participation Like? in the forum Clinical Trials 5 months ago
Nop, not really, but I will be little afraid from this trial and I don’t know how could be the effect of the new medicine on my body.
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Kassem Banawer replied to the topic What is the most effective medicine/treatment you use or have used to date? in the forum Diagnosis Information and General Questions 5 months, 1 week ago
Usually, I need to transfusions the blood during my strong crisis because my blood become very low but the problem that I’m facing every time, my Ferritin storage become higher and higher like 1500 mg/l which make the doctor gives me medicine to control this level, do anyone face this issue before when exchange the blood?
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Kassem Banawer replied to the topic Friends with Sickle Cell in the forum Adults With Sickle Cell Disease 5 months, 1 week ago
i don’t have friends with SCD but i think it would be more better if i have, to share all my worries and concern with him.
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Kassem Banawer replied to the topic Cost of living crisis in the forum Adults With Sickle Cell Disease 5 months, 1 week ago
I think the living cost become more high everywhere @Michael, in case for me i prefer to pay more money just to keep my home warm.
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Kassem Banawer replied to the topic Summer Memories in the forum Adults With Sickle Cell Disease 5 months, 1 week ago
@Michael Yap That’s it,
I like routine and it’s not bothering me in anyway.
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