Kassem Banawer

For me Tito during pain management period if i can set there are many things can distract me like watch movies or playing games or reading , but if i’m still in pain nothing can distract me in this case i need to take rest and sleep until the pain cool down.

@Michael  now i’m playing the COD Warzone 2.0 on my PC, it’s still new release and i see that game is good to play with friends which having lots of fun and isolation of bussy world

I don’t think @Michael i can do anything during my hard crisis because my pain completly control all my body even if you take a good pain killer you have to take rest or i will face more pain, at the end the crisis make my body out of control that because should be someone close to you and take care for your responsibilities like my wife of any…[Read more]

<span class=”ContentPasted0″>I’m same @Michael when leaving stress world of work and responsibilities just goes to my private world like playing online games with my friends watching movies</span><span class=”ContentPasted0 ContentPasted1″> eating light snacks and I love to be quiet sometimes like drop my mind into empty space no sound no noise n…[Read more]

Breakfast @Michael is the most important meal of the day because it’s the starting power of your body engine, for me sleep is the most thing I really want doing more, my sleep rate is not enough its only 5 to 6 hours maximum during work days, I’m sure I need more because I feel tired most of the time.

there is no racism like this where i live, it would be very bad really.

No problem @viviane its ok I totally understand that some of people can’t feel your pain but as you said hope all go well in the future.

I hope @viviane hospitals follow procedures which should be registered in our profiles mentioned that we are SCD patients so we need special care and our admission would be more easy, at least if your crisis is high you have no choice you need an opioid dosage or you will get heart attack like what happened to me once because I had a high level of…[Read more]

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<p class=”ContentPasted0 ContentPasted1″>yes sure @Michael my advice to carers (just give me my morphine dosage and i will be fine) hehehehehe LOL</p>

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yes @Tito I don’t like to go hospital but some of high-level crisis can’t be handled at home so as you said to make my stay conferrable, I should take my personal items like light pajamas and lots of underwear also my electronics like phone charger.

Usually in winter season i don’t like heat direct on my body or heavy thinks over me or even electric blanket sheet on my bed this make my sleep uncomfortable, i think you can use this blanket if your bedroom is not warm enough so you can make the bed warm it’s a very good idea, but for me i have like the down below wall heater which i bought…[Read more]

thanks @tito

For me I can’t start my day if I didn’t take my breakfast which is very important to me as lunch should be intime also dinner in time, 3 moderate meals every day, this is my routine, but sometime if I late to lunch, at night i will eat some fruits or salad.

Usually, I’m not taking enough time for sleep during working days about 5 to 6 hours maximum but at weekend I’m taking much time about 9 to 10 hours sleep, I know that’s is not perfect sleep routine, I can’t sleep early every day.

It’s Good to hear that @Ada, God bless you.

Nop, not really, but I  will be little afraid from this trial and I don’t know how could be the effect of the new  medicine on my body.

Usually, I need to transfusions the blood during my strong crisis because my blood become very low but the problem that I’m facing every time, my Ferritin storage become higher and higher like 1500 mg/l which make the doctor gives me medicine to control this level, do anyone face this issue before when exchange the blood?

i don’t have friends with SCD but i think it would be more better if i have, to share all my worries and concern with him.

I think the living cost become more high everywhere @Michael, in case for me i prefer to pay more money just to keep my home warm.

@Michael Yap That’s it,

I like routine and it’s not bothering me in anyway.