Forum Replies Created

  • Wendell Robinson

    Member
    September 10, 2021 at 7:55 am in reply to: I Have Sickle Cell, I Am Not Lazy.

    The struggle is real…

    Thing is, YOU can’t tell her about what we deal with. Someone else will have to inform her.

    The problem is, we look okay, even when we are far from okay. On the outside, at least. (Unless we’ve hit that 9/10 pain threshold.) So, whatever you tell her will seem like justifying. A hematologist will be the best source of information, for her. That and a thread of articles from newspapers and magazines (including obits).

    It’s a tough situation. All you can do is walk in your truth and ignore the noise. (I know, easier said than done.)

    peace&blessings