Hi Tito,
Your question really strikes home and I cannot wait to see how others will reply.
It has not been easy lately maintaining a healthy work/life balance. I have been in an out of the hospital this past year. I had a viral infection at the end of 2019 (December 28), then I got diagnosed with influenza A in January 2020. Since then I have been in and out of the hospital with pain, low H&H, extreme fatigue etc. I have not been able to work much. It has been extremely stressful since I need to work in order to secure my health insurance. I really do not know what to do. It seems like work and sickle cell are incompatible. I am at the point of giving up, put an end to my nursing career. I feel like if I continue to work I might not live a long life because it is hard for me to take care of myself when I work.
Any suggestion or advice are welcome
Best,
Viviane