Sickle Cell Disease News Forums Forums Diagnosis​ Info ​and​ ​General​ ​Questions What does a typical appointment day look like for you?

  • What does a typical appointment day look like for you?

    Posted by tito-oye on May 13, 2021 at 2:00 pm

    Whenever I go for a general check-up with my haemotologist, I expect the following:

    I arrive and check-in

    Get weighed
    Get measured
    Give a urine sample
    Have a blood test

    Once the urine sample and blood test are analysed, I would go and speak to my consultant.
    The conversation lasts around 20 minutes and it ends with her prescribing me medicine that I may have run out of.

    This takes around 1-2 hours from start to finish. It’s pretty monotonous but hey, it’s necessary.

    What is your experience like?

    tito-oye replied 2 years, 10 months ago 2 Members · 2 Replies
  • 2 Replies
  • mrs-norris-mulligan

    Member
    May 14, 2021 at 5:17 pm

    Tito,

    My appointments are not that lengthy. Maybe 30 minutes. I am not asked for an urine sample. I do get blood labs before I go since I take Hydroxyurea for SCD to build red blood cells. I tell my nurse what my weight is on the scale I use at home. Prescriptions are updated at least each 6 months.
    Elaine

    • tito-oye

      Member
      May 17, 2021 at 12:26 pm

      Ahh that sounds way more convenient!

      In the UK we can only get 3 months worth of Hydroxyurea at a time.

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