[Mrs. Norris-Mulligan]

Hello~
I do have issues with my vision. I am followed by two ophthalmologists, retinal and cornea. I had a floater that caused blindness in my right eye and my vitreous was removed 2019. That may be common in the elderly who do not have SCD. I had a corneal transplant and cataract removal in my left eye and waiting for the same in my left eye. The corneal transplant was secondary to SCD. That was done because I have Fuchs Corneal Dystrophy. It is hereditary. I am followed also for the risk of retinal detachment which is associated with SCD. After surgery healing is very slow with regards to my vision returning to baseline. I hope this sheds light on vision concerns and the discussion. Take care!

[Mrs. Norris-Mulligan]

I was an adult when I was diagnosed. 32y. There was pain but I did not know the source. During pregnancy was the most painful experiences. I believe having a knowledgable hematologist is crucial for care. It is my understanding from my doctors that Sickle Cell Disease is progressive. I will be 67y this year. My pain increased and now the Hydroxyurea is increased which has helped tremendously. I believe reading factual info is crucial to one’s health as one becomes older from teenage years and older. Unless a parent has the condition, identifying with that deep pain is difficult. A parent’s support though must be accepted and appreciated.