Heavier menstrual bleeding and pain during menstrual periods appear to be prevalent among adolescents and young women with sickle cell disease (SCD), affecting their quality of life, but few of these patients use hormonal therapies to help regulate their cycles, a single-site U.S. survey study reported. Knowledge of what…
Skin grafts can ease pain associated with leg ulcers and improve wound healing in people with sickle cell disease (SCD), according to a study in France. The procedure consists of the surgical collection of a piece of healthy skin on the body that is then transplanted to the injured…
A portrait of 4-year-old Kynnedi Sturges, who is living with sickle cell disease (SCD) in Camden, Arkansas, was unveiled last week in an international art exhibit by the nonprofit Beyond the Diagnosis. Displaying artworks of 40 children with rare diseases, the exhibit is being hosted by…
The Georgia State University Research Foundation has received a grant from the Centers for Disease Control and Prevention (CDC) to support the ongoing Sickle Cell Data Collection (SCDC) program in that state. Established by the CDC in 2015, the program seeks to assess the frequency of…
Corticosteroids taken during pregnancy are a risk factor for more severe vaso-occlusive crises (VOCs) in women with sickle cell disease (SCD), according to a study in France. Particularly, this risk was higher in women with a more severe SCD type and evidence of more severe disease. Newborns exposed…
The U.S. Food and Drug Administration (FDA) has cleared for use Trinity Biotech’s Premier Resolution System, an automated analyzer that can quickly and accurately detect and quantify hemoglobin variants. Hemoglobin is the protein that red blood cells use to carry oxygen through the bloodstream. Several hemoglobin variants identified…
Sickle Cell 101 is teaming up this summer with Cleveland Browns player Donovan Peoples-Jones — known to fans as DPJ — and his Limitless Foundation Football Camp to raise awareness about sickle cell trait and hydration, both key issues for people living with disorders like sickle cell disease…
The Oman Ministry of Health has approved Endari (oral L-glutamine) for children, ages 5 and older, and adults with sickle cell disease (SCD), its developer Emmaus Life Sciences has announced. The disease affects around 3,000 people in Oman, with about 6% of the population estimated to carry…
Children’s of Alabama hosted a special event, in collaboration with famed football coach Nick Saban, to deliver a flock of social robot ducks — the My Special Aflac Duck, free to certain pediatric patients — to 18 children in the state with sickle cell disease (SCD) and cancer.
The Assistance Fund (TAF) has launched a new financial assistance program to cover out-of-pocket medical expenses for people with sickle cell disease (SCD). The program will cover copayments, health insurance premiums, costs related to ground travel needed to get treatment, and genetic testing, for people with SCD who…
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