Oluwatosin is a practicing medical doctor, a passionate and award-winning sickle cell advocate, and an educator. She’s the founder of an online Facebook support group for people living with sickle cell disease called “Sickle Cell Celebs” and “Sicklelive Foundation,” an NGO that caters to sickle cell warriors. She’s a Nigerian who has lived with sickle cell disease for approximately four decades. Her column promises to be expository, educative, and compelling.
I often hear a fascinating question among those living with sickle cell disease, sickle cell advocates, parents, caregivers, etc. — “Can sickle cell disease affect our goals and career choices?” — and I usually find some of…
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From my experience, pain is one of the hallmark symptoms of sickle cell disease. In fact, it is its trademark. Unsurprisingly, the translation of sickle cell disease in my Yoruba language is “aro’moleegun,” which denotes “bone pain.”…
“I have another patient with sickle cell disease, but she’s not affected as severely as you. What’s wrong with you?” “This person has your same genotype. Why isn’t she experiencing the same sickle cell complications as you…
“I have sickle cell disease. So what?” That was my reaction as an 11-year-old girl about 24 hours after I learned I had sickle cell disease. Even though I had the disease, I was still the best…
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