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Sick, and Sick of Keeping Notes About Being Sick

I was unwell for a week in August. It began with deep lethargy. After about two days of that, the vomiting started. Everything made me vomit: brushing my teeth, drinking water, nibbling food. I went into the hospital after about four days because I was sure I was experiencing…

You Should Be Your Biggest Advocate for Quality Care

As a child growing up with sickle cell disease, constant trips to the hospital gave me the perception that the doctors and nurses in charge of my care were superhuman, and they always provided me with quality care. It seemed there was no issue they couldn’t fix. I…

When Getting Used to Chronic Pain Becomes a Problem

I have a difficult time knowing when I’m not feeling well apart from when I have a severe illness. That sounds ridiculous, right? Because I have a chronic condition, someone might think I would know when I feel sick. But the irony is that a chronic condition can result in…

People Experience Sickle Cell Disease Differently

Because sickle cell disease affects people differently, I’ve never met two people with the disease who have the same story. A quick Google search can introduce someone to the basics of sickle cell, such as its biology and common triggers, but understanding its differences and the ways it…