Author Archives: Elaine Goodman

Recent Posts

• Do We Have to Die for Change?
• For World Sickle Cell Day, Read About My Reality
• Oxbryta in HOPE-KIDS Meeting ‘Urgent Need’ of Children, Ages 4-11
• Get Ready for NORD’s Patient and Family Forum, Set for June 26-27
• Oxbryta Given Promising Innovative Medicine Status in UK
• Welcome to ‘Sickle Sagas’: Documenting Life With My Disorder
• Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases
• Sickle Cell Disease Is an Inseparable Part of My Identity
• Supporters Urged to Wear Red for World Sickle Cell Day on June 19
• How to Prepare Ahead of Time for Sudden Hospitalizations