Mary Chapman, features writer —

The Sickle Cell Disease Foundation (SCDF), in partnership with the Center for Inherited Blood Disorders (CIBD) and The Hills Tandem, is leading a real-world health data initiative that is progressing toward its goal of improving sickle cell disease (SCD) patients’ life quality and transforming their care. The…

Legislation to provide new outreach and support services to Colorado residents living with sickle cell disease (SCD) is now law. Gov. Jared Polis (D) signed the measure (SB24-042) calling for the appropriation of $200,000 to make the Arie P. Taylor Sickle Cell Disease Outreach Program part of the…

Note: This story was updated June 17, 2024, to correct that “Shine the Light on Sickle Cell” is a SiNERGe campaign independent of the Sickle Cell Disease Association of America. The theme of this year’s World Sickle Cell Day is “Hope Through Progress: Advancing Care Globally” and supporters are all…

The Colorado House of Representatives has passed legislation that seeks to improve health outcomes for state residents who live with sickle cell disease (SCD) through a new community outreach program. If made into law, the measure (SB24-042) would appropriate $200,000 to establish the Arie P. Taylor Sickle Cell…

The National Institutes of Health (NIH) has awarded a $6.1 million grant to the Feinstein Institutes for Medical Research to advance knowledge of red cell disorders, such as sickle cell disease (SCD), to develop new and better treatments. SCD is caused by genetic mutations that ultimately result…

NMDP Cycle is kicking off cycling events throughout the U.S. to raise funds to help eradicate barriers to treatment for patients, including those with sickle cell disease (SCD), who need a blood stem cell transplant. Formerly known as the Be The Match Tour de TC, NMDP Cycle…

Suburban Propane joined the American Red Cross and other supporters in February to mark Black History Month with a blood drive that celebrated the life and work of Charles R. Drew, a renowned surgeon, medical researcher, and pioneer in blood transfusions. Drew was known as the “father…

A national £1.5 million ($1.9 million) technology investment in the U.K. is aiming to expand access to red blood cell exchange devices for people with sickle cell disease (SCD) living in North East England. The focus will be on improving treatment availability for underserved patients in urban, rural, and…

RoslinCT will manufacture the groundbreaking new gene therapy Casgevy (exagamglogene autotemcel) for sickle cell disease (SCD) patients in the U.S. and U.K. RoslinCT, a cell and gene therapy contract development and manufacturing company, has facilities in Edinburgh, Scotland and Hopkinton, Massachusetts. The company worked with Vertex…

A Phase 3 clinical trial evaluating whether adding red blood cell exchange to standard-of-care improves outcomes for adults with high-risk sickle cell disease (SCD) is still recruiting at sites across the U.S., as well as in France and Brazil. The study, called Sickle Cell Disease and CardiovAscular Risk Red…