Posts by: Mary Chapman

News

In what’s viewed as a significant step toward addressing unmet needs in California’s sickle cell disease (SCD) community, scientists and policy leaders met recently to discuss proposed legislation, gaps ... Read more

May 16, 2019May 16, 2019

SCD Experts Call for Routine Screening Among Migrants

News

Backed by a new study suggesting that sickle cell disease (SCD) is common among refugees in Southern Europe, some hematologists are calling for increased screening measures. Specialists are working ... Read more

April 23, 2019April 23, 2019

NFL Broadcaster Huddles With Emmaus to ‘Sideline Sickle Cell’ Disease

News

In an effort to raise awareness about the latest in sickle cell disease therapy, Emmy award-winning National Football League (NFL) broadcaster Solomon Wilcots has partnered with biopharmaceutical company Emmaus ... Read more

March 14, 2019March 14, 2019

Congo Delegation Visits Howard University to Bolster Collaborations on Sickle Cell Disease

News

A Republic of Congo delegation of health and higher education representatives recently met with Howard University officials, aiming to ultimately advance research into sickle cell disease (SCD) — a particularly pervasive ... Read more

February 14, 2019February 14, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 7, 2019February 7, 2019

Emmaus Unveils Co-payment Assistance Program for SCD Endari Patients

News

For eligible sickle cell disease (SCD) patients covered by commercial insurance, biopharmaceutical company Emmaus Life Sciences will offer financial assistance to those who need help covering their monthly Endari ... Read more

January 31, 2019January 31, 2019

FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

News

The U.S. Food and Drug Administration(FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with new guidance on natural history— how disorders such as spinal ... Read more

January 29, 2019January 29, 2019

Registration Open for Sickle Cell Foundation of Georgia’s Annual Camp New Hope

News

The Sickle Cell Foundation of Georgia (SCFG) will host its 42nd Annual Camp New Hope July 14-20 for youngsters living with sickle cell disease (SCD). The fun and enrichment ... Read more

January 18, 2019January 18, 2019

Howard University President Launches ‘Run To Cure Sickle Cell’ Campaign

News

Howard University President Wayne A.I. Frederick has unveiled a campaign to raise awareness and funds for the school’s Center for Sickle Cell Disease. “I am proud to officially launch the Run to ... Read more

November 27, 2018November 27, 2018

Novartis Announces Funding for Projects Aimed at Supporting Sickle Cell Disease Community

News

For this year’s Solutions to Empower Patients (STEP) program, global healthcare company Novartis has announced it will fund up to five original and creative ideas to help sickle cell ... Read more