Posts by: Mary Chapman

News

The Sickle Cell Disease Association of Illinois (SCDAI) announced plans to hold its 45th Annual 8K Walk/Jog/Bike-A-Thon on July 20, continuing the group’s longstanding efforts to raise funds and ... Read more

June 18, 2019June 18, 2019

Howard University Symposium Focuses on Sickle Cell Cure

News

Howard University’s 6th Annual World Sickle Cell Awareness Day Symposium has its sights set on a cure for the inherited blood disorder. To be held June 19 — the 10th ... Read more

June 6, 2019June 6, 2019

Sickle Cell Advocate Howard Woolley Wins Prestigious Award for Working to Improve Patient Care

News

Prominent sickle cell advocate and philathropist Howard Woolley has won a Sickle Cell Outstanding Service Award, presented recently at the 2019 Roland B. Scott Memorial Symposium. Themed “Preparing the ... Read more

May 28, 2019May 28, 2019

Novartis’ STEP Program Funding Projects Supporting Sickle Cell Community

News

Novartis‘ Solutions to Empower Patients (STEP) program will fund five nonprofit organizations that address some of the most pressing concerns in the sickle cell disease (SCD) community. Nearly $250,000 ... Read more

May 21, 2019May 21, 2019

Stakeholders Call for Improved Care for SCD Patients in California

News

In what’s viewed as a significant step toward addressing unmet needs in California’s sickle cell disease (SCD) community, scientists and policy leaders met recently to discuss proposed legislation, gaps ... Read more

May 16, 2019May 16, 2019

SCD Experts Call for Routine Screening Among Migrants

News

Backed by a new study suggesting that sickle cell disease (SCD) is common among refugees in Southern Europe, some hematologists are calling for increased screening measures. Specialists are working ... Read more

April 23, 2019April 23, 2019

NFL Broadcaster Huddles With Emmaus to ‘Sideline Sickle Cell’ Disease

News

In an effort to raise awareness about the latest in sickle cell disease therapy, Emmy award-winning National Football League (NFL) broadcaster Solomon Wilcots has partnered with biopharmaceutical company Emmaus ... Read more

March 14, 2019March 14, 2019

Congo Delegation Visits Howard University to Bolster Collaborations on Sickle Cell Disease

News

A Republic of Congo delegation of health and higher education representatives recently met with Howard University officials, aiming to ultimately advance research into sickle cell disease (SCD) — a particularly pervasive ... Read more

February 14, 2019February 14, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 7, 2019February 7, 2019

Emmaus Unveils Co-payment Assistance Program for SCD Endari Patients

News

For eligible sickle cell disease (SCD) patients covered by commercial insurance, biopharmaceutical company Emmaus Life Sciences will offer financial assistance to those who need help covering their monthly Endari ... Read more