Sickle Sagas – a Column by Dunstan Nicol-Wilson

I have been on a journey since 2018 to share my experiences with sickle cell disease and help others avoid some of the mistakes I’ve made along the way. This journey has exposed me to many different concepts that I reevaluate regularly. For instance, I’ve written previously about…

I took a break recently and rewatched some of my favorite anime and cartoons. There’s a popular idea in these types of media called a “canon event,” which is like a “what if” concept. The idea is that a canon event must happen for a person to become who…

For a long time, I’ve been against the notion of being called a sickle cell warrior. I didn’t feel I deserved the title. A warrior, to me, is a skilled combatant who’s spent years developing a craft, like the Vikings who inspired my first column. Being a warrior,…

The past few months have brought me a stretch of good health. Because the cold can trigger a sickle cell crisis for me, I tend to have fewer issues during the summer. I’ve also been taking my vitamins and supplements, eating a healthy diet, doing what’s…

The pain from a sickle cell crisis is difficult to describe. To explain, I’d compare it to getting your hand repeatedly slammed in a car door, with that pain searing every second throughout the event. Suffering through one of those episodes is physically, emotionally, and mentally challenging. But to…

As a teenager with sickle cell disease, I thought that one of my biggest challenges in life would be disease management. I worried about what my life would look like, how many medications I would have to take each day, and whether I would be able to have…

Over the past month, I’ve had caregivers, friends, and siblings of patients with sickle cell disease reach out to me with questions about how to better support their loved one. Each scenario I’ve read has reminded me how difficult it can be to support someone with a chronic condition.

Hello, June! This month is very significant in my life, with various celebrations and anniversaries. For one, I’ve spent two years writing almost weekly about my sickle cell disease journey on Sickle Cell Disease News! I was in awe that I lasted a couple of months and was…

While I realize it’s impossible to plan for every eventuality, I often think about what I could’ve done better or differently to prevent a sickle cell pain crisis. Like the random bumps in life’s journey, a crisis can happen despite my best plans. A month has passed since I…

For the past few days, I’ve been thinking about learned behavior. For example, why do I speak the way I do? Why do I respond to specific cues the way I do? Upon reflection, much of it stems from my environment, how I was raised, and with whom I interacted…