Sickle Sagas – a Column by Dunstan Nicol-Wilson

At the start of the year, I challenged myself to have zero sickle cell crises. I knew this goal was ambitious and something I’d never done as an adult, but I wanted to try. Putting it out there in the universe was my way of holding myself accountable.

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell awareness is more than just a day: It is every day. However, building consistency when you have…

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend instead of suggesting an alternative. Of course, offering an alternative doesn’t mean no or that they won’t work with…

I work in the research and development field, an industry I didn’t know much about until I completed my first college degree. In this field, I’ve developed a vast understanding of how clinical trials work and why they are necessary to develop novel treatments for various illnesses and diseases.

Growing up in my African household, religion was a core element of my upbringing. As a family and community, we would thank God for all aspects of life and pray diligently for healing and blessings. But as a child, I struggled with this because I felt ungrateful, constantly asking…

I love playing adventure games, especially those in which your decisions affect the story’s outcome. For example, if you choose to steal, you’re a villain, and if you choose to share your possessions, you start down the path toward becoming a hero. The choices may be small in the grand…

Representation of different people in all areas of society is key to empowering the next generation. Having a role model that looks or talks like you validates your own experience. But as a Black man with a chronic condition, role models in my community were few and far between. For…

April is my birth month, and as my birthday approaches, I am deep in thought. My thoughts flash ahead, worrying about how close I am to old age. Similarly, I go backward in time, reflecting on my life and my saga so far, wondering where all the time went.

No one enjoys being hospitalized. I hate it when a sickle cell crisis forces me to call an ambulance. This is due to the severe pain I experience during a crisis and the fear that lingers from previous hospitalizations. Additionally, every time I’ve been hospitalized by the National…

Last week, I was privileged to facilitate a discussion between two mothers who have children with sickle cell disease. I can only imagine how difficult it must be for a parent to see their child in pain from an invisible illness, a source of constant worry. The mothers’ perspectives…