At this stage in life, I know my body pretty well. I’ve gotten better at avoiding my triggers, which means I have fewer sickle cell crises than I used to. For example, I try not to expose myself to cold weather, exhaustion, or stress, but that alone can be…
Once a sickle cell crisis surpasses my manageable pain threshold, it sadly becomes time for me to go to the hospital. Hospitalizations always fill me with despair and anxiety due to past experiences, so I reject the notion unless I’m facing dire circumstances. My past experiences have not been…
Traveling is one of my greatest passions. I enjoy seeing new things and immersing myself in different cultures, especially through local cuisines. Living with sickle cell disease means I have to take extra precautions when traveling, especially amid the COVID-19 pandemic. Unfortunately, my trips don’t always go as…
The results of a government inquiry tasked with investigating the failures of sickle cell care in the U.K., published in a report titled “No One’s Listening,” reveal evidence of substandard care, inadequate training of healthcare professionals, and attitudes that were underpinned by racism. Since these findings were released, there…
As an adult, I’ve been privileged to have a small community of sickle cell patients that I can connect and share experiences with. As winter approaches here in the U.K., I’ve noticed on social media that many sickle cell patients are in the hospital. I empathize with them, because it…
In the animated TV series, “One Piece,” a skill called Kenbunshoku Haki lets its users glimpse into the future, allowing them to dodge bullets and punches, and in some instances, even evade death. I think that would be a great power to have…
I was recently on a panel with fellow Sickle Cell Disease News columnist Tito Oye and other sickle cell patients, as part of a sickle cell-focused episode for the YouTube channel Make It Common. It was an amazing experience to participate in this panel and discuss our health…
My therapist asked me, “What does it mean to you to be a ‘masculine man,’ and how does having sickle cell disease impact that meaning?” It’s a question I hadn’t fully considered before, but about the same time I came across a podcast titled, “Unlearn Everything,”…
I didn’t reveal that I had sickle cell disease when I started my first job here in the U.K. As a new college graduate, and with the odds stacked against me because I had no previous work experience, I didn’t want my health condition to also affect my employment…
The treatment Adakveo (crizanlizumab) has been made available in the U.K. as the first new therapy for sickle cell disease in over two decades. The aim of Adakveo, which will be available to patients 16 and older in England and Wales, is to reduce the number of sickle…
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