The Sickle Cell Crusader - a Column by Oluwatosin Adesoye

Living with sickle cell disease in Nigeria, where I’m from, often entails hiding one’s condition because of societal stigma. However, I’ve chosen to defy this norm and speak openly about my sickle cell challenges. When I was 11, my parents disclosed my health condition to me. At the…

Numerous myths about sickle cell disease persist globally, leading to negative attitudes toward patients. As a result, many people with sickle cell conceal their diagnosis and are reluctant to seek medical care and treatment to avoid facing stigma and discrimination. Their physical and mental health may also…

Second in a series. Read part one. In my last column, I outlined several “red flags” that people with sickle cell disease should be wary of when dating. These include partners who lack a mind of their own, exhibit violent behavior, believe they’re doing someone a favor by…

First in a series. Love and relationships can significantly affect the lives of people with sickle cell disease. A good relationship can contribute to improved mental and physical health, while a bad relationship may lead to the opposite. Unfortunately, finding love can be challenging for people with sickle cell,…

In 2006, the World Health Organization recognized sickle cell disease as a global public health problem. Sickle cell is not just a genetic blood condition, but a multisystem disease that can damage organs and shorten life spans. Moderate or severe forms can be especially virulent. While some…

It took me a while to realize that intense emotions can lead me to a sickle cell crisis. Most of my health professionals never mentioned it when educating me about crisis triggers. From what I’ve learned as a physician, emotional triggers aren’t researched or documented enough. Hence, the…

Chronic diseases and pain can sometimes take away one’s happiness. They are proven predisposing factors for depression. In my case, sickle cell disease has been challenging. Living with frequent acute pain episodes, chronic pain, and numerous sickle cell complications can easily snuff out your happiness, especially…

I often hear a fascinating question among those living with sickle cell disease, sickle cell advocates, parents, caregivers, etc. — “Can sickle cell disease affect our goals and career choices?” — and I usually find some of the answers as interesting as the question. I’ve heard answers like,…

From my experience, pain is one of the hallmark symptoms of sickle cell disease. In fact, it is its trademark. Unsurprisingly, the translation of sickle cell disease in my Yoruba language is “aro’moleegun,” which denotes “bone pain.” If you have moderate to severe sickle cell disease, pain is…

“I have another patient with sickle cell disease, but she’s not affected as severely as you. What’s wrong with you?” “This person has your same genotype. Why isn’t she experiencing the same sickle cell complications as you are?” “I know a sickle cell warrior who can do this…