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Distress Evident in Parents Caring for Teens with Sickle Cell, Survey Finds
A survey of 121 parents caring for adolescents, ages 10-19, with sickle cell found 43.8% gaves responses indicating emotional distress and life disruptions. Read more about the survey’s findings here.
Do you find these findings surprising?
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2 Replies
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No not at all. I am the parent of a 21 year old with SS. I love her more than anything as she is a joy to me, but life has always been stressful trying to work and make sure I was always there for her. She is a college student now and I still worry about her health as she seems to down -play the seriousness of her disease.
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Thank you for sharing Leola, as a mother I am sure you will always do everything in your power to make sure your daughter is well. I am sure as she grows older she’ll take the necessary precautions to ensure she remains healthy.
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