[Jacqueline]

I am 71 y/o with sickle-thal rather than SCD, and I am usually hospitalized twice a year to manage painful crises. What does it feels like? A SEVERE, sharp,throbbing,aching,pain. It’s like having an excruciating toothache wherever it locates, usually in the arms,legs,back,or chest. When my pain meds, hot baths, heating pads don’t work to alleviate the pain,I’ll go to the hospital where I can get stronger painkillers (dilaudid, morphine, etc.) and intravenous hydration to reduce the pain. Not fun! I am fortunate, however, to have physicians who are knowledgeable, compassionate, and willing to work with me. Also, sickle-thal has not stopped me from accomplishing my life and career goals.