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Describe a sickle cell crisis
I do not have sickle cell myself but I interact with a lot of people who do. The majority of my knowledge relating to the condition comes from them.
One thing that I constantly hear differing views about is the way a sickle cell crisis feels…how would you describe it?
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2 Replies
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I am 71 y/o with sickle-thal rather than SCD, and I am usually hospitalized twice a year to manage painful crises. What does it feels like? A SEVERE, sharp,throbbing,aching,pain. It’s like having an excruciating toothache wherever it locates, usually in the arms,legs,back,or chest. When my pain meds, hot baths, heating pads don’t work to alleviate the pain,I’ll go to the hospital where I can get stronger painkillers (dilaudid, morphine, etc.) and intravenous hydration to reduce the pain. Not fun! I am fortunate, however, to have physicians who are knowledgeable, compassionate, and willing to work with me. Also, sickle-thal has not stopped me from accomplishing my life and career goals.
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Hello @honeychile15,
Thank you for your reply, I really love the way you describe it!
Yep, when our usual methods of pain prevention/management fail its straight to the hospital!
Ahh amazing, sickle cell can’t stop us 💪🏾💪🏾💪🏾
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