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•  Sickle Cell Forum Administrator

  While My Health Challenges Are Tough, I Smile Through Life

   Sickle Cell Forum Administrator replied 3 years, 5 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Telehealth ‘Helpful’ Option to In-person Care, Rare Disease Patients Say

   Sickle Cell Forum Administrator replied 3 years, 5 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Cyclerion Suspends Development of Olinciguat for Sickle Cell Disease

   Sickle Cell Forum Administrator replied 3 years, 6 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Efforts Continue in US to Expand Newborn Screening Panels

   Sickle Cell Forum Administrator replied 3 years, 6 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Medications Activating sGC Protein May Have Promise as SCD Therapy

   Sickle Cell Forum Administrator replied 3 years, 6 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Saying I’m Fine When I’m Not to Avoid the Hospital

   Sickle Cell Forum Administrator replied 3 years, 6 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Study: Medical Marijuana Reduces Pain, Hospital Visits in SCD Patients

  Deleted User replied 3 years, 6 months ago 2 Members · 1 Reply

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  LentiGlobin Gene Therapy for SCD Given Prime Medicines Status by EMA

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Trying a Different Medication to Address Iron Overload

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Brain-Gut Axis’ May Be What Links Stress and Crises in SCD Patients

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Thinking Ahead by Cultivating Healthy Habits Now

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Distress Evident in Parents Caring for Teens with Sickle Cell, Survey Finds

  Michael Quadri replied 3 years, 7 months ago 2 Members · 2 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Sickle Cell Patients Should Have Medical Exemption in the UK

  Tito Oye replied 3 years, 7 months ago 2 Members · 2 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Activities Underway for Newborn Screening Awareness Month

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Study Identifies FDA-approved Medications With Potential to Treat SCD

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  My 2 Hopes for Sickle Cell Awareness Month

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  I’m Tired of Explaining Sickle Cell Disease to Everyone I Meet

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Breaking the Habit of Assuming the Worst in Others

  Tito Oye replied 3 years, 7 months ago 2 Members · 2 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  My Birthday Wish for Sickle Cell Patients

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  Sickle Cell Awareness Month Events Underway Across US

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Grant Allows SCD Patient Registry of COVID-19 Infections to Include Africa

   Sickle Cell Forum Administrator replied 3 years, 7 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  Same But Different Photo Contest Celebrates People With Rare Diseases

   Sickle Cell Forum Administrator replied 3 years, 8 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  Sickle Cell Forum Administrator

  What Chadwick Boseman Taught Me About Perseverance

   Sickle Cell Forum Administrator replied 3 years, 8 months ago 0 Member · 0 Replies

  Adults​ ​With​ ​Sickle Cell
•  Sickle Cell Forum Administrator

  EveryLife Foundation Offering Scholarships for US Rare Disease Patients

   Sickle Cell Forum Administrator replied 3 years, 8 months ago 0 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions