Here’s My List of Things to Do While Social Distancing
The spread of the coronavirus means that those of us with sickle cell disease need to be extremely cautious. We have all been advised to practice social distancing. I have been in my…
Her Sickled Journey — Tito Oye
Tito is a 23-year-old London-based tenancy manager and lover of life. For as long as she can remember, she’s had a passion for helping others. She writes to help others realize that sickle cell doesn’t need to define their entire identity.
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Cold Weather Makes It Harder for Me to Manage Sickle Cell Disease
Now that the summer months have passed, I find that it’s harder to forget that I have sickle cell disease. You may be thinking, “How can she ever forget that she has sickle…
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Learning to Swim with Sickle Cell
Swimming is an essential life skill. Everyone should learn to swim, as it could be the difference between life and death. My parents believed similarly and signed me up for swimming lessons as a…
My Weekend Getaway with Sickle Cell Anemia
I rarely leave London, but this weekend I went on a mini “staycation” to Kent with 24 of my friends for a birthday celebration. Packing We rented a mansion on Airbnb with enough space…
Stress Can Trigger a Sickle Cell Crisis. Here’s How I Avoid It
Many things can trigger a sickle cell crisis. The first triggers I experienced ranged from temperature changes in my environment to dehydration. But as I got older, I began to experience a new…
3 Ways to Combat Fatigue with Sickle Cell Disease
Fatigue is a common symptom associated with sickle cell disease. Due to the smaller size of our red blood cells, we cannot carry as much oxygen as those with healthier red blood cells. This…
Sharing Health Worries with Friends Is Good for My Well-being
Living with sickle cell disease is not easy. It affects every area of one’s life. An important part of managing the challenges that come with the disease is having a solid…
Encounters with Medical Students Can Be Upsetting
My hospital also is a university full of medical students. Trainees follow their supervisors from patient to patient to get a sense of how their work applies to real-life situations. Nine times out of…
Have You Joined the Sickle Cell Disease News Forums Yet?
For most of my life, I hid the fact that I have sickle cell disease. People only knew about my health if they needed to know. In other words, the only ones I could…
Sickle Cell’s Prognosis Taught Me to Live with Purpose
We were nearing the end of a biology lesson. In an attempt to excite the class for the next lesson, my teacher put up a slide that read, “Why people with sickle cell die…
The Importance of Better Representation in the Medical Industry
Sickle cell disease is a condition that mostly affects people from an African or African-Caribbean origin. Nevertheless, the majority of those who have treated me for this condition have been healthcare professionals of…
More Life Hacks for Managing Sickle Cell
I previously shared some tips for managing sickle cell. If you found those useful, I have a few more suggestions that also may help. Deep Heat I find that when I am in…
This Is What a Hospital Stay Looks Like
Whenever I feel ill, I exhaust my options. To make my sickle cell pain go away, I drink hot water, take painkillers, fill my hot water bottle, find a distraction, or sleep. Most…
