Two of the most commonly known symptoms of sickle cell disease are a vaso-occlusive crisis (perhaps the best-known symptom) and fatigue. But others aren’t so well-known; in fact, I’d say most people aren’t aware…
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Every now and then, something happens that motivates me to educate others about how a particular action, policy, or system is oppressive to me, as a Black woman with sickle cell disease. It’s…
The sickle cell community needs unity if we are ever going to see change. A few weeks back, I came across someone trying to start a charity for sickle cell patients. Ordinarily, you…
Last week, I shared news of my most recent hospital admission for sickle cell disease. One of the by-products of a sudden hospitalization is the interruption to my social life, family life,…
If you’re a regular reader of this column, you probably noticed I’ve been silent for a few weeks. Unfortunately, I had a sickle cell crisis and was hospitalized. The good news is…
I recently shared my thoughts here on why accepting the reality and implications of a sickle cell diagnosis is essential for both patients and their loved ones. One element of my support…
I recently shared my journey to accept my diagnosis of sickle cell disease. When people are told they have an illness, it not only affects them, but those around them as well. It’s…
My last column about my medication compliance triggered an interesting conversation with my sister. I’d written about what I did to reach 100% compliance, which is great and necessary for someone who, like…
Back in 2020, I shared details of my medication regimen at the time to treat my sickle cell disease. Since then, I’ve had a few changes in my health status. Thankfully, I…
I can’t think of one area of my life that isn’t affected by sickle cell disease — a reality that can easily become overwhelming and emotionally draining. That’s why a strong support system…
Would you believe me if I told you that I was once hospitalized with a sickle cell crisis, and a reflexology foot massage is what caused the pain to subside? Probably not, right?…
Recently, for the first time I can remember, sickle cell disease has been in mainstream media quite a bit. Because much of the discourse has focused on treatments and curative therapies,…
Last week, I shared that I’m conflicted about joining clinical trials that test potential treatments for sickle cell disease. Although I don’t yet trust the healthcare system enough to participate, there are…
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