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  • NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
  • We Need Credible Information During the Pandemic, Not Dangerous Myths
  • The Isolation Diaries
  • Inflammation Markers Identify Sickle Cell Patients at Risk for Worse Outcomes, Study Suggests
  • Availability of Endari Not Affected by COVID-19 Pandemic, Emmaus Says
  • Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
  • Here’s My List of Things to Do While Social Distancing 
  • GBT Supports Sickle Cell Patients During COVID-19 Pandemic
  • Approved SCD Therapies Too Costly, ICER Watchdog Group Says
  • Learning to Swim with Sickle Cell