• Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases
  • ICER Will Compare Lead Candidate Therapies Crizanlizumab and Voxelotor for Efficacy, Value
  • New Technology May Allow for Better Monitoring of Sickle Cell Disease
  • Cognitive Decline Not Evident in Black Americans with Sickle Cell Trait, Study Finds
  • Survival After Kidney Transplant Lower in SCD Patients Than Other Kidney Disease Patients, Analysis Shows
  • Phase 3 Trial of Rivipansel in Treating SCD Pain Crisis Fails to Meet Goals, Pfizer Announces
  • Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
  • Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
  • NHLBI Stepping Up Efforts to Apprise SCD Patients of Therapies and Trials
  • Emmaus Takes ‘Sideline Sickle Cell’ Campaign to Annual SCD Family and Educational Event
  • T-cells Promote Inflammation in Children with Sickle Cell as well as Adults, Study Finds
  • $19.2M Grant to Support  SCD Trial into Red Cell Exchange in US and Europe