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June 9, 2020 News by Forest Ray PhD

Coalition Will Address Racial Disparities in Rare Disease Communities

The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Getting a timely and accurate diagnosis for a disease that few people — sometimes even physicians — have heard of is challenging on its own merit.

October 3, 2017 News by Margarida Azevedo, MSc

Poll of African-Americans Finds Only a Third Aware of SCD’s Racial Disparities

A “National Poll of African-Americans on Sickle Cell Disease Awareness” conducted earlier this year has revealed that, while most African-Americans are familiar with sickle cell disease (SCD), only about one-third are aware that it affects people of African descent in a disproportionate way. The findings highlight the need for more…

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