Ana Pena, PhD,  —

Clinicians at the Loma Linda University Children’s Hospital successfully performed that institute’s first stem cell transplant, and report having “effectively cured” a girl with sickle cell disease (SCD). “She is now disease free and can…

The Green Park Collaborative (GPC) is working with the Sickle Cell Disease Association of America (SCDAA) to develop a consensus of desired outcomes to be used in clinical studies evaluating new treatments for sickle cell disease (SCD). The project, named coreSCD, aims to deliver a list of recommendations on…

Reproductive capacity, specifically the number of eggs left in the ovaries, may decline earlier in women with sickle cell disease (SCD), a study reports.  Although sickle cell disease patients in this study had no reported fertility problems, they produced less…

Randomized controlled trials are needed to examine the benefits of vaccinating people with sickle cell disease (SCD) against salmonella infections, which can be particularly fatal to children with the disease, a study says. The review study, “Vaccines for preventing invasive salmonella infections in …

Music therapy can help ease pain in adults with sickle cell disease (SCD), a pilot study showed. A single session of music improvisation with a music therapist helped significantly diminish the intensity of patients’ pain and uplift their moods, the study noted. The research, titled “…

The Sickle Cell Disease Association of America (SCDAA) recently launched the first patient-driven registry for sickle cell disease (SCD), called Get Connected. The new registry was launched by the SCDAA on June 19, World Sickle Cell Day,…

A team of researchers led by HudsonAlpha Institute for Biotechnology and the Clinical Sequencing Exploratory Research (CSER) consortium found that genome sequencing enabled the diagnosis of almost 30 percent percent of children with unexplained developmental delay or seizures. Some of the participants carried genetic…

Researchers found that inhaled corticosteroids (ICS) given at the time of hospital admission did not improve outcomes in children with sickle cell disease (SCD)-associated acute chest syndrome. The study, “Early initiation of inhaled corticosteroids does not decrease acute chest syndrome morbidity in pediatric…