Sickle cell disease is highly misunderstood, and our patient community is acutely aware of this. One of the key…
Articles by Mary Shaniqua
I recently had my first blood transfusion of the year. It’s one of the most common treatments for sickle…
Sickle cell disease is a constant, annoying “companion” in my life. My list of grievances about the illness is…
Living with sickle cell disease comes with a heavy cost. Much of your time is spent seeking to understand…
One Saturday evening, I was sitting on the sofa with my husband watching a film. Suddenly, I felt a sharp,…
I’ve previously written about the difficulties I’ve sometimes faced when trying to get my prescriptions filled to treat sickle…
The past few weeks have been extremely difficult — heartbreaking, even. Here in the U.K., I’ve seen two recent reports…
Although approximately 1 in 6 people worldwide are living with a significant disability, the narrative that those of us with…
An unfortunate reality is that life costs more when you are disabled. Why is this? Simply put, living with a…
Here in the U.K., October is Black History Month, and this year’s theme is “reclaiming narratives.” I believe…