Author Archives: Mary Shaniqua

For World Sickle Cell Day, Read About My Reality

World Sickle Cell Day is upon us tomorrow, June 19. Following are memories that illustrate sickle cell’s ugly grip on my reality. *** The year was 2018 and the British Society for Haematology Annual Scientific Meeting booked me to speak about sickle cell pain management. I live…

Why We Need Better Doctor-patient Communication

It has been a while since I last wrote. This is because unfortunately, I had another hospital admission. I was admitted in mid-April and discharged last week, so I was hospitalized for quite some time. I had a sickle cell crisis, although I’m uncertain about what caused it. I…

What a Top-up Blood Transfusion Looks Like for Me

I am scheduled to have a blood transfusion today. So, I want to take this opportunity to explain how I prepare and what this means for me. I have previously written about my treatment and medication regimen. In that column, I explained that I underwent exchange blood transfusions…

Sickle Cell May Knock Me Down, but I Will Stand Back Up

In a previous column, I mentioned some of the good things that happened to me last year. This included a decrease in my iron levels and my subsequent switch from Desferal (deferoxamine mesylate) subcutaneous infusion pumps to Exjade (deferasirox) tablets. This was one of my greatest highlights of…