Medical technology company Hemanext is partnering with the Silicon Valley-based nonprofit Sickle Cell 101 (SC101) to promote…
Articles by Mary Chapman
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To improve life for people with sickle cell disease (SCD), Global Blood Therapeutics (GBT) has awarded grants worth $50,000…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
From sporting red gear to entering a spoken word contest, supporters globally are poised to mark World Sickle Cell…
Two U.S. nonprofits are partnering to tackle legislative issues that benefit sickle cell disease (SCD) patients and their families.
To inform sickle cell disease (SCD) patients and their caregivers about blood transfusions, which are commonly used to treat…
Registration is open for the 8th annual “Walk with the Stars,” one of the largest fundraisers organized by the…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…