Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…
Articles by Mary Chapman
While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
To identify at-risk service members, the U.S. Army has begun testing recruits for the sickle cell trait (SCT), and…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
Hemex Health was awarded third place and $100,000 in a National Institutes of Health (NIH) competition for its…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
As it does each September during Newborn Screening Awareness Month, Baby’s First Test is sharing information and stories that…