Susan Boswell,  —

SCDAA Plans June 22 ‘Walk With the Stars’ Fundraiser in Baltimore

Robert and Tanique Mitchell still remember the moment they found out that their granddaughter, Kiarra Roseburgh, would be born with sickle cell disease (SCD). “We realized that we needed to prepare, and we made two goals as a family: to provide emotional support for Kiarra and to empower ourselves…

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Rare diseases affect about 30 million Americans — roughly the same number as those with type 2 diabetes. Yet only 5 percent of the estimated 7,000 rare diseases known to science have cures or treatments approved by the U.S. Food and Drug Administration (FDA). Raising awareness of those illnesses and highlighting…