Her Sickled Journey – a Column by Tito Oye

lockdown, overwhelmed, friend, hospital, happiness

Tito is a 23-year-old London-based tenancy manager and lover of life. For as long as she can remember, she’s had a passion for helping others. She writes to help others realize that sickle cell doesn’t need to define their entire identity.

Tips for Traveling by Airplane with Sickle Cell

In my previous column, I shared my suggestions on the preparations you should consider before taking a trip with sickle cell. The environment inside an airplane is not ideal for our bodies. On a flight, we are subjected to extended periods of reduced oxygen levels, tight spaces, and cold…

What to Do When Traveling with Sickle Cell

The love I have for traveling is like no other. I love immersing myself in different cultures and experiencing different ways of living. However, as someone with sickle cell, traveling can be a completely different experience. For me, it’s definitely more stressful. Here are a few things…

How I Recover from a Sickle Cell Crisis

In the past, when I felt a vaso-occlusive crisis coming on, my plan was to wait it out. However, I quickly realized that not trying to improve my situation could potentially damage my health. I decided to remedy that by focusing on self-care. Following are some steps I take…

My Finicky Hygiene Habits Help to Reduce Infection Risk

Clean freak, germaphobe, OCD, finicky — these are some of the terms that people have used to describe me from a very young age. I can see why, and I think that anyone who spent a significant part of their childhood in the hospital will understand, too. I picked…

Don’t Be Shy About Asking to Remain in the Hospital

One of the best feelings in the world is cutting a hospital bracelet. Cutting a hospital bracelet can symbolize a fresh start. You’ve been discharged from the hospital. You are feeling like the best version of yourself — happy, relaxed, optimistic, and ready to prove that sickle cell can’t keep…

I Wish My Illness Wasn’t So Invisible

Sometimes I wish sickle cell anemia was visible. I wish people had X-ray vision and could see how my cells struggle to course through my veins. If people could see the damage that sickle cell anemia causes, I’m certain that life would be easier. Instead of constantly apologizing to…