Columns

I recently got a new manager at work, which has improved my quality of life as a disabled worker. This change also instigated the creation of an emergency evacuation plan for me, and that change I question. To be clear, I’m not a wheelchair user, but I occasionally use…

Reserved, calm, and quiet are adjectives that have been used to describe me at some point, and I’d say they’re pretty accurate. I usually step out of my shell only when I’m around people I’m comfortable with or in a one-on-one situation. In group settings, I tend to be more…

Pain episodes brought on by sickle cell disease may come on suddenly and vary greatly from patient to patient. The ability of children and adolescents to chronicle and communicate their painful experiences may be facilitated by the use of diaries. I cannot stress enough how important it is for…

Chronic diseases and pain can sometimes take away one’s happiness. They are proven predisposing factors for depression. In my case, sickle cell disease has been challenging. Living with frequent acute pain episodes, chronic pain, and numerous sickle cell complications can easily snuff out your happiness, especially…

An eight-hour flight, a three-hour boat ride, a six-hour bus ride, and then a two-hour hike up a mountain: This is the journey I would take if I decide to visit extended family in one of the more remote parts of Cameroon. It would be a challenging, long, and arduous…

Today is Good Friday, which in my faith marks the crucifixion of Jesus. The Bible narrates that Jesus was crucified, remained dead for three days, and rose to life on the third day. The resurrection is celebrated on Easter Sunday. Much of the Christian faith is based upon this weekend.

Note: This column includes thoughts about suicide. Resources for help are listed at the end of the column. Recently, I was privileged to speak at the Smile of a King Foundation, which was formed in London to support the mental health of Black men. It honors Tashan King, a…

I often hear a fascinating question among those living with sickle cell disease, sickle cell advocates, parents, caregivers, etc. — “Can sickle cell disease affect our goals and career choices?” — and I usually find some of the answers as interesting as the question. I’ve heard answers like,…

Research is essential for change. For example, researching different diets and exercise regimens has helped me learn how to better manage my sickle cell disease. I’m open to discovering new techniques because no one drug or treatment will work for everyone. I’m also keen to learn about…

Healthy eating is crucial for those who suffer from sickle cell disease. It’s beneficial both for overall health and to avoid complications. For children with sickle cell disease, the breakdown of red blood cells requires more energy than in typically developing children. A child who is affected…