Columns

At the start of the year, I challenged myself to have zero sickle cell crises. I knew this goal was ambitious and something I’d never done as an adult, but I wanted to try. Putting it out there in the universe was my way of holding myself accountable.

In a previous column, I gave a brief overview of my family’s experience with sickle cell disease. Both my parents have the sickle cell trait, and of their four children, I’m the only one with sickle cell disease. One of my siblings has normal blood and two…

As World Sickle Cell Day approaches on June 19, I’ve been thinking about my contribution to raising awareness about sickle cell disease. For those dealing with the condition, sickle cell awareness is more than just a day: It is every day. However, building consistency when you have…

I struggle with the fear of letting others down. For example, suppose someone scheduled a work meeting that is inconvenient for me. I’ll do anything to make sure I attend instead of suggesting an alternative. Of course, offering an alternative doesn’t mean no or that they won’t work with…

In recent columns, I have written about why knowing your genotype is imperative when planning a family, as well as the steps to take to avoid having children with sickle cell disease. But for some, these simply are not options. Particularly for those already married, they may have…

I work in the research and development field, an industry I didn’t know much about until I completed my first college degree. In this field, I’ve developed a vast understanding of how clinical trials work and why they are necessary to develop novel treatments for various illnesses and diseases.

Living with sickle cell disease is no easy feat. At 32, I still struggle to understand my body and live as freely as I’d like. Because it’s within our power to prevent children from experiencing this horrible, debilitating disease, I believe in doing everything possible to avoid passing it…

I recently started a new job with a charity, and my new colleagues are hands down the most understanding group of people I have ever worked with.  I’ve always felt the need to avoid the subject of my health during job interviews, but, as with my previous job,…

Growing up in my African household, religion was a core element of my upbringing. As a family and community, we would thank God for all aspects of life and pray diligently for healing and blessings. But as a child, I struggled with this because I felt ungrateful, constantly asking…

If you haven’t already, I would recommend you get your genotype tested. Sickle cell is an inherited disease. This means if both parents carry a sickle gene, there is a chance the baby can have sickle cell disease. If both parents have the sickle cell trait, there is…