“Disabled” is not a pejorative, but it definitely felt like one when I was growing up. The U.S. Centers for Disease Control and Prevention defines disability as “any condition of the body or mind (impairment) that makes it more difficult for the person with the condition to do certain…
Recently, I was playing a question-and-answer game with my partner, and one question that came up was, “What message would you like to tell your younger self?” My answer essentially was about prioritizing and measuring my life by the important things. In my younger years, I had a life plan,…
COVID-19 cases are increasing again here in the U.K., and government officials can no longer prioritize improving the economy over protecting people’s health. Instead, they must acknowledge the toll the virus has taken on people and the pressure a high number of cases will place on the National…
I have felt pretty overwhelmed lately. After months of sheltering at home and being relatively inactive, I’ve suddenly taken on a ton of new responsibilities. I’m trying to get into the habit of having a busy schedule again and managing my time more effectively, but sometimes I feel like I’m…
In a previous column, I spoke about some of the things that trigger a sickle cell crisis. This week, I want to share some pointers on how I try to address a crisis in its early stages while at home. Electric blanket I have a heated electric…
One of my favorite features is my smile, and I find that in life, I have many things to smile about. I have very good people around me who provide an amazing support system, I have a home, I have a job, I live in a country that provides…
I share much about my journey with sickle cell disease on social media. I find it to be a handy tool in raising awareness, because it allows me to do so many things. For example, I can share facts about sickle cell disease, as well as details…
A sickle cell crisis is one of the main symptoms sickle cell patients face. However, just because we all experience the same symptoms, or similar ones, it doesn’t mean the condition affects everyone equally. As I meet more sickle cell patients, I’m further convinced that the condition affects each…
Friendships are beautiful and make life much more meaningful. I love being in the company of friends. They have been a blessing in many ways, especially when it comes to my health. For a long time, I didn’t talk to my friends about my health. I kept all my health…
Needing to go to the hospital due to a vaso-occlusive crisis is never ideal or pleasant. As a kid, the idea of going to the hospital was a nightmare to me. I never really understood the importance of seeking medical attention when I experienced a bad crisis, and I…
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