I have been writing for Bionews, the publisher of Sickle Cell Disease News, for over a year now. This experience has been amazing, to say the least. When I was first contacted about becoming a columnist, I was skeptical. I questioned whether I would be good…
Columns
I hate when sickle cell disease gets in the way of life, although I feel its effects 24/7. There is no escaping the symptoms, such as fatigue and chronic pain, which are less intermittent than the pain crises. But most times I can live with it, I can…
Iron overload is a side effect that some sickle cell patients suffer from as a result of blood transfusion programs being used as long-term treatment plans. Back in September, I wrote about trying a new medication to address my iron overload problem. For the past two years,…
On Nov. 9, Pfizer and BioNTech announced that their COVID-19 vaccine was found to be more than 90% effective in preventing people from contracting the novel coronavirus. On Nov. 16, Moderna announced their COVID-19 vaccine to have an efficacy of 94.5%. I had zero expectations for…
‘Disabled’ Is Not a Bad Word
“Disabled” is not a pejorative, but it definitely felt like one when I was growing up. The U.S. Centers for Disease Control and Prevention defines disability as “any condition of the body or mind (impairment) that makes it more difficult for the person with the condition to do certain…
Recently, I was playing a question-and-answer game with my partner, and one question that came up was, “What message would you like to tell your younger self?” My answer essentially was about prioritizing and measuring my life by the important things. In my younger years, I had a life plan,…
Preparing for Lockdown 2.0
COVID-19 cases are increasing again here in the U.K., and government officials can no longer prioritize improving the economy over protecting people’s health. Instead, they must acknowledge the toll the virus has taken on people and the pressure a high number of cases will place on the National…
I have felt pretty overwhelmed lately. After months of sheltering at home and being relatively inactive, I’ve suddenly taken on a ton of new responsibilities. I’m trying to get into the habit of having a busy schedule again and managing my time more effectively, but sometimes I feel like I’m…
In a previous column, I spoke about some of the things that trigger a sickle cell crisis. This week, I want to share some pointers on how I try to address a crisis in its early stages while at home. Electric blanket I have a heated electric…
One of my favorite features is my smile, and I find that in life, I have many things to smile about. I have very good people around me who provide an amazing support system, I have a home, I have a job, I live in a country that provides…
Recent Posts
- FDA awards breakthrough device status to sickle cell diagnostic test
- Blood screen may spot potential complications in sickle cell children
- The good and bad of being a medical doctor and a sickle cell disease patient
- Birth control is safe, with low risk of clots, for women with sickle cell: Review
- Chronic pain means greater disability for young people with sickle cell: Study
- Managing depression while living with sickle cell disease
- Screening tool identifies developmental risks in young children with SCD: Study
- Having my first MRI brain scan reminds me to keep advocating for myself
- Evaluating my options for treating sickle beta-zero thalassemia
- Researchers aim to repurpose diabetes drug to treat SCD kidneys