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I share much about my journey with sickle cell disease on social media. I find it to be a handy tool in raising awareness, because it allows me to do so many things. For example, I can share facts about sickle cell disease, as well as details…

A sickle cell crisis is one of the main symptoms sickle cell patients face. However, just because we all experience the same symptoms, or similar ones, it doesn’t mean the condition affects everyone equally. As I meet more sickle cell patients, I’m further convinced that the condition affects each…

Friendships are beautiful and make life much more meaningful. I love being in the company of friends. They have been a blessing in many ways, especially when it comes to my health. For a long time, I didn’t talk to my friends about my health. I kept all my health…

Needing to go to the hospital due to a vaso-occlusive crisis is never ideal or pleasant. As a kid, the idea of going to the hospital was a nightmare to me. I never really understood the importance of seeking medical attention when I experienced a bad crisis, and I…

After many months of sheltering in place, or shielding, as we call it here in the U.K., the time finally came for me to leave my house for reasons unrelated to medical issues. The government had paused shielding requirements, but I had been committed to continuing my self-isolation indefinitely…

Iron overload is a common side effect for sickle cell patients participating in blood transfusion programs. When this happens, the body’s excessive iron levels can cause an accumulation of iron in the body’s organs, which can lead to serious organ damage. I was diagnosed with iron overload…

Having a lifelong condition like sickle cell disease forces people to grow up pretty quickly. We must acknowledge certain responsibilities early on, and we can’t afford to ignore them because we don’t want ignorance to worsen our health. Many have the luxury of growing up without health concerns,…

Just like that, it’s September again – aka Sickle Cell Awareness Month. Sickle cell awareness means shining a light on sickle cell warriors and revealing what life is like with the condition. Not just the science, but the real people dealing with it. This is our…

I turned 31 on Aug. 20, 2020. That’s 31 years as a sickle cell patient, and what a journey it has been so far! As sickle cell patients, we are often exposed to all sorts of negative comments and stigmas surrounding the condition. So, I want to use my…

Death always is a sobering thing to process. Hearing about someone’s untimely passing — whether the person was close to us or not — reminds us of life’s fickle nature.  We recently heard the sad news of actor Chadwick Boseman’s passing at the age of 43. Boseman…