Dealing with sickle cell disease is a constant battle. In every moment, I either am fighting my way out of a painful crisis or fighting to stay out of a crisis. There is no rest. I can’t take my foot off the gas. I can’t decide one…
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Living with sickle cell disease, I rely on several medications and treatments for various situations. In general, I take medications for my own well-being, as research shows that sickle cell patients who struggle to comply with medication regimens tend to experience a lower quality of life. Ergo, to have…
My parents knew they were carriers of the sickle cell trait before I was born, so they made an effort to find out if I had the disease during the prenatal stages of my mother’s pregnancy. Once they found out I had it, plans and preparations were made to…
One of the most widely discussed symptoms of sickle cell anemia is a sickle cell crisis. This is an episode of pain caused when sickle-shaped red blood cells block the body’s blood vessels and prevent oxygen from flowing. One can read the biological explanations of such a crisis, but…
My activity levels have steeply dipped because I’ve been restricted to my house. I’m unable to go on my normal walks or to the gym, and many friends are in a similar position thanks to the pandemic. To combat inactivity, my friend proposed an exercise challenge: “The 1,000 Reps Challenge.”…
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‘What’s Wrong with You Now?’
“What’s wrong with you now?” I am all too familiar with that phrase. From a young age, I have often felt like I’ve had to prove myself in regards to my health. As if this disability isn’t enough, I’ve also had to deal with others’ opinions. Sickle cell can be…
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Keeping Safe During a Lockdown
In the early days of this outbreak, only a couple of media outlets nonchalantly reported the events surrounding COVID-19. Back then, we had no idea how serious this virus was. The word coronavirus wasn’t even an active part of my vocabulary. Fast-forward a few months later and it…
“Survival of the fittest” is a phrase I have come to loathe. This manner of thinking is particularly appalling to hear as a sickle cell patient. I have heard the phrase more frequently lately, against the backdrop of the current COVID-19 pandemic. But what does it mean? Historically,…
The intentional practice of gratitude is an essential life skill that’s helped me endure the toughest situations. A couple of years ago, my health went through a really tough period. I thought I knew everything about managing sickle cell but everything…
I have been self-isolating since March 19, and already I have been through a series of emotions during this lockdown period. Initially, most of these emotions were negative. A week into my self-isolation, the realization that I can’t leave my house hit me. Even though…
Recent Posts
- Disease burden heavy for SCD patients in US, despite promise of gene therapy
- The conversation we avoid: Telling children they have sickle cell disease
- New study finds distinct molecular signatures in newborns with SCT
- Blood test may improve kidney damage detection in children with SCD
- Understanding the impact of leg ulcers in sickle cell disease
- Asthma seven times more likely in SCD children than in unaffected siblings
- Sickle cell drug at high dose eases anemia symptoms in severe SCD
- Researchers urge more talk on menstrual pain in sickle cell clinics
- Sickle cell patients shifting to adult care visit ER more often: US study
- Early results of trial testing tebapivat in SCD expected later this year