One of the most widely discussed symptoms of sickle cell anemia is a sickle cell crisis. This is an episode of pain caused when sickle-shaped red blood cells block the body’s blood vessels and prevent oxygen from flowing. One can read the biological explanations of such a crisis, but…
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My activity levels have steeply dipped because I’ve been restricted to my house. I’m unable to go on my normal walks or to the gym, and many friends are in a similar position thanks to the pandemic. To combat inactivity, my friend proposed an exercise challenge: “The 1,000 Reps Challenge.”…
‘What’s Wrong with You Now?’
“What’s wrong with you now?” I am all too familiar with that phrase. From a young age, I have often felt like I’ve had to prove myself in regards to my health. As if this disability isn’t enough, I’ve also had to deal with others’ opinions. Sickle cell can be…
Keeping Safe During a Lockdown
In the early days of this outbreak, only a couple of media outlets nonchalantly reported the events surrounding COVID-19. Back then, we had no idea how serious this virus was. The word coronavirus wasn’t even an active part of my vocabulary. Fast-forward a few months later and it…
“Survival of the fittest” is a phrase I have come to loathe. This manner of thinking is particularly appalling to hear as a sickle cell patient. I have heard the phrase more frequently lately, against the backdrop of the current COVID-19 pandemic. But what does it mean? Historically,…
The intentional practice of gratitude is an essential life skill that’s helped me endure the toughest situations. A couple of years ago, my health went through a really tough period. I thought I knew everything about managing sickle cell but everything…
I have been self-isolating since March 19, and already I have been through a series of emotions during this lockdown period. Initially, most of these emotions were negative. A week into my self-isolation, the realization that I can’t leave my house hit me. Even though…
I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the…
As a sickle cell advocate, many people have come to me for advice, especially in this pandemic period. Those with sickle cell want all sorts of advice during the coronavirus outbreak but accurate information is not as readily available as we are used to. Nobody likes…
The Isolation Diaries
On March 16, 2020, United Kingdom Prime Minister Boris Johnson announced that in response to the global COVID-19 pandemic, vulnerable citizens should shield themselves for 12 weeks. My instant reaction was utter shock. How could I feasibly spend the next 12 weeks inside my house? It’s been two weeks…
Recent Posts
- New reimbursement deal in Germany expands access to Casgevy for SCD
- New York study finds regional gaps in sickle cell disease hospitalizations
- When a sickle cell pain crisis interrupts a stretch of good health, part 1
- Scientists discover how stressed red blood cells make hemoglobin
- How my sickle cell disease advocacy has evolved over time
- New study links sickle cell anemia to lower ovarian reserve in women
- $3M Breakthrough Prize honors duo whose work changed SCD treatment
- Etavopivat Phase 3 results support potential approval in sickle cell disease
- New diagnoses result in new grief and a new relationship with my body
- Study finds lower treatment use among SCD patients in sub-Saharan Africa