“Survival of the fittest” is a phrase I have come to loathe. This manner of thinking is particularly appalling to hear as a sickle cell patient. I have heard the phrase more frequently lately, against the backdrop of the current COVID-19 pandemic. But what does it mean? Historically,…
Columns
The intentional practice of gratitude is an essential life skill that’s helped me endure the toughest situations. A couple of years ago, my health went through a really tough period. I thought I knew everything about managing sickle cell but everything…
I have been self-isolating since March 19, and already I have been through a series of emotions during this lockdown period. Initially, most of these emotions were negative. A week into my self-isolation, the realization that I can’t leave my house hit me. Even though…
I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the…
As a sickle cell advocate, many people have come to me for advice, especially in this pandemic period. Those with sickle cell want all sorts of advice during the coronavirus outbreak but accurate information is not as readily available as we are used to. Nobody likes…
The Isolation Diaries
On March 16, 2020, United Kingdom Prime Minister Boris Johnson announced that in response to the global COVID-19 pandemic, vulnerable citizens should shield themselves for 12 weeks. My instant reaction was utter shock. How could I feasibly spend the next 12 weeks inside my house? It’s been two weeks…
The spread of the coronavirus means that those of us with sickle cell disease need to be extremely cautious. We have all been advised to practice social distancing. I have been in my house for a week now and have become bored due to my lack of routine. So…
Swimming is an essential life skill. Everyone should learn to swim, as it could be the difference between life and death. My parents believed similarly and signed me up for swimming lessons as a child. However, I don’t remember the lessons so much as the pain and frequent hospital admissions.
If someone asked you to tell your life story, what would you say? We all have a story. Some might begin by describing their life from the point of meeting their partner, or from high school, or perhaps following the birth of their child. We remember and retell our stories…
I rarely leave London, but this weekend I went on a mini “staycation” to Kent with 24 of my friends for a birthday celebration. Packing We rented a mansion on Airbnb with enough space for the 25 of us, though I was not sure what the environment in the house…
Recent Posts
- How I advocate for my health needs while traveling for work
- Brain development changes seen in children with sickle cell anemia
- Beam to seek OK of gene-edited cell therapy risto-cel for sickle cell disease
- Agios to seek accelerated approval in US of oral mitapivat for SCD
- Japanese agency awards $32M to advance sickle cell treatment to trials
- Intentional lifestyle changes got me through winter without a crisis
- Chicago nurses lead charge to speed up SCD emergency care: Study
- Recognizing the warning signs and symptoms of a sickle cell crisis
- US senators seek 5 more years of federal funding for stem cell program
- Adults with SCD face high risk of stroke in their 30s and 40s, study finds