Shaniqua’s Sickle Chronicles – a Column by Mary Shaniqua

Mary is a 30-year-old London-based sickle cell patient using her experiences to build up others and raise awareness of what it’s like to live with a rare disease.

How to help a loved one with sickle cell disease

How can you help a loved one with sickle cell disease? As a patient, I’m asked this question frequently, especially when I’m unwell. The reality is that there’s no single grandiose action that will help people living with sickle cell disease. I’d challenge loved ones to think smaller,…

Reflecting on Another Year With Sickle Cell Disease

For me, 2022 has just been OK in terms of sickle cell disease. I’m still not where I’d like to be health-wise, but I’m getting closer. One thing I’d really like to celebrate is that I haven’t contracted any severe infections this year. That is a big win, and…