As last year drew to a close, a thought-provoking post in the Sickle Cell Celebs Facebook group inspired me to reflect on what I wish people understood about sickle cell disease. This introspection led me to come up with a long list that I’ve decided to share. There’s…
Sickle cell disease can manifest as both a visible and invisible illness, depending on the individual and their unique complications. For some, the symptoms are apparent, but for others, the disease remains largely hidden. Many sickle cell patients are prone to stigma and discrimination. When the disease is…
Blood transfusions play a critical role in the management of sickle cell disease. They can help prevent and manage various complications as well as reduce disease severity. This lifesaving intervention has brought many sickle cell patients on the verge of death back to life — including me. Despite being…
Living with sickle cell disease is not a proverbial bed of roses; instead, it’s a journey of twists and turns. Yet I’m grateful for the experience. It’s imparted invaluable life lessons that have shaped me into the woman I am today, and that woman is a better human being.
Note: This column describes the author’s own experiences with various medications, including nonsteroidal anti-inflammatory drugs and oral opioids. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping any therapy. Sickle cell disease involves recurring episodes of pain, which can be acute…
As I prepare to celebrate my 38th birthday on Oct. 18, I find myself lost in thought, reflecting on the incredible journey that has brought me to this milestone. Over the years, I’ve survived with flying colors after all the complications that sickle cell disease has thrown at…
I’ve discussed before how infections have been a menace to managing sickle cell disease. I’ve also explained how sickle cell patients are more susceptible to infections because of our compromised immune systems, splenic dysfunction, and sometimes, chronic inflammation. Infections can be both triggers of sickle cell…
As a health professional and sickle cell patient, I’m constantly driven to create awareness about the disease. My motivation transcends professional duty; it’s a personal quest to make a difference. September may be National Sickle Cell Awareness Month, but for me, every month is an opportunity to educate…
I once thought I might be one of the few people living with sickle cell disease who do not experience mood swings. However, upon deeper self-reflection, I realized that I might very well be the queen of them. Mood swings are a common complication of sickle cell disease,…
I once believed that the stigma surrounding sickle cell disease only existed outside of the sickle cell community, perpetrated by those who don’t live with the condition. However, my experiences interacting with fellow patients and joining sickle cell support groups have revealed a harsh reality: Stigma,…
Get regular updates to your inbox.