Celebrating ourselves is a way to promote sickle cell awareness
World Sickle Cell Day took place on June 19, and one of my experiences that day prompted me to write about what it means to me. That day, I saw an ongoing debate by…
The Sickle Cell Crusader — Oluwatosin Adesoye
Adesoye Oluwatosin is a practicing physician, a passionate and award-winning sickle cell advocate, and educator. She’s the founder of Sickle Cell Celebs, an online community for people living with sickle cell disease, and of Sicklelive Foundation, an NGO that caters to people living with sickle cell disease. She’s a Nigerian diagnosed with sickle cell anemia (HBSS) in 1987 when she was just 1 year old. She enjoys using her personal and medical experience to educate and create awareness about sickle cell disease and also help reduce health inequalities in its management. She’s called “The Sickle Cell Crusader.” Her column promises to be expository, educative, and compelling.
Featured Post
My 2-year evolution as a sickle cell disease columnist
As I look back on my two-year journey as a sickle cell disease columnist for Bionews, the parent company of this website, I’m struck by how much I’ve grown and evolved. In fact,…
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Silence of sickle cell in children doesn’t always indicate mild disease
Sickle cell disease (SCD) is a dynamic condition that affects people differently. Its symptoms and complications are evident in some patients from childhood, while in others, it may be silent or asymptomatic. There…
Malaria prevention is crucial to sickle cell disease management
Malaria remains one of the most common triggers of sickle cell crises in patients living in malaria-endemic regions, while sickle cell disease (SCD) also predisposes patients to frequent malaria infection. As a result,…
On sickle cell habitus, the physical symptoms of severe cases
Sickle cell habitus, the distinct physical features of some people with sickle cell disease, are typically associated with patients who have more severe forms of the disease, such as sickle cell anemia. But…
Why some SCD patients give birth to children with the disease
While I’ve been a sickle cell disease (SCD) advocate for more than two decades, I only seriously committed to this work after experiencing one of my worst complications: a…
Could gene therapy improve my life as an adult with sickle cell?
Several weeks ago, when news of the first sickle cell disease patient to be cured by gene therapy went viral online, I completely ignored it because I wasn’t interested. As a sickle cell…
What avascular necrosis in sickle cell disease looks like for me
In sickle cell disease, avascular necrosis (AVN) can occur due to the progressive impairment of blood supply to the bones caused by the sickling process. In AVN, the bone tissue dies and the…
How sickle cell disease has impacted my goals and dreams
Recently, I’ve been reflecting on how living with sickle cell disease has affected many of my dreams, goals, and lifestyle choices. Despite the changes, I have continued to dream and pursue…
Why I’m constantly feeling guilty because of sickle cell disease
A few weeks ago, I was in excruciating pain in the dead of the night. I’m not one to disturb others when I’m in pain unless it’s severe and I need help to manage…
The too-unspoken struggle: Constipation and sickle cell disease
Some of my childhood memories still linger. I vividly remember, for instance, the lonely nights spent in my bed while struggling with a painfully distended abdomen, a discomfort extreme enough to take away many…
The importance of adequate hydration in sickle cell management
Hydration plays a vital role in the management of sickle cell disease. It offers numerous benefits, including enhanced blood flow, and can help prevent or treat sickle cell crises and other disease complications.
