“When can I tell my child that they have sickle cell disease?” As a physician living with the condition, this remains one of the most frequent questions I receive from parents and caregivers. Many parents delay that conversation until their children reach their teenage years or older. Some only…
The Sickle Cell Crusader - a Column by Oluwatosin Adesoye
Leg ulcers are one of the most distressing and disabling complications of sickle cell disease (SCD). These open wounds mostly affect patients with sickle cell anemia (HbSS), although people with any type of SCD may experience them. The severity varies widely; some heal in weeks, while others…
Pursuing a purposeful life while living with moderate to severe sickle cell disease can be very tough, as it presents a unique set of challenges. When the pain is frequent and the complications are real, it’s easy to lose track of one’s goals. However, I’ve learned that living with purpose…
Being a medical doctor who also lives with sickle cell disease remains one of my greatest achievements. Becoming a physician, despite the odds, was not an easy journey. It demanded resilience, relentlessness, dedication, and hard work. Nearly a decade into my medical career, I’ve realized that being a doctor with…
Note: This column discusses suicidal ideation. Resources for help are listed at the end of the column. Growing up, I was a happy-go-lucky child. I was always in a good mood and rarely cried. I believed depression would never find me until sickle cell disease said, “Hold my beer.” Depression…
In my 39 years with sickle cell disease, pain has been an uninvited and frequent guest and my most prominent symptom. Sickle cell crises are acute episodes of pain caused by the sickling of red blood cells, which impairs blood flow throughout the body. While I’ve had countless painful episodes…
The challenges of living with a physical disability in a society that is not inclusive can be overwhelming. Sickle cell disease causes both visible and invisible disabilities, and as someone who experiences both, I have faced countless difficulties. I have discussed the struggles of living with invisible disabilities, but…
Sickle cell disease presents a range of complications, some of which are visible while others are invisible. For the first two decades of my life, I only dealt with invisible complications, which allowed me to keep my challenges private. However, as I entered my early 20s, the visible complications…
I write today to express my sincere appreciation for the care and love doctors, nurses, and all health professionals show to people with sickle cell disease. They are such remarkable caregivers. Where would we warriors be without their help? They are truly indispensable. However, as a healthcare professional living…
I have always been a passionate advocate for sickle cell disease prevention, sometimes even prioritizing it over advocating for a cure. I envision a world where no child has to suffer the complications and pain of the disease, although realistically, I don’t see that happening yet. Most of the…
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